Local News
Winnipegger Mark Joseph leading efforts to fund treatment for rare genetic disorder that afflicted his daughter
By MYRON LOVE It’s not likely that many readers are familiar with Prader-Willi Syndrome (PWS), but it is a condition that Mark and Jennifer Joseph know all too well, as their ten-year-old daughter, Darwin, lives with this disorder.
Prader-Willi Syndrome is a rare life-threatening genetic disorder that occurs in approximately one out of every 15,000 live-births. PWS affects many aspects of an individual’s life. A particular symptom is a relentless and insatiable hunger.
“We were fortunate that we were living in Toronto when Darwin was born so that we had access to many, many specialists and the Hospital for Sick Children,” says Mark, a pilot with Westjet who moved to Winnipeg in 2021. Immediately at Darwin’s birth the doctors knew there was something atypical about Darwin. The room flooded with specialists to assess and treat the newborn, who was labelled “failure to thrive,” as she was as limp as a rag doll, and wasn’t crying. “This was definitely one of the scariest and most traumatic experiences of our lives,” adds Mark.
“The hospital’s lead paediatrician had no experience with PWS, but remembered hearing of it. Genetic testing began, and by one-month-of-age, we had a definitive diagnosis of Prader-Willi Syndrome – a diagnosis that would change the trajectory of our lives,” notes Jennifer.
“Darwin’s diagnosis required us to become experts in her condition,” says Mark, who is the newly installed President and Chair of the Foundation for Prader-Willi Research Canada. “Most medical professionals have never encountered anyone living with it. We had to learn all we could to best advocate for our daughter so that we could have the best possible outcome for her future.”
“Darwin’s early years were filled with therapies – physical therapy, occupational therapy, speech therapy, hippotherapy, even feeding therapy, as an infant due to her low muscle tone. We still have therapies, but nothing like in Darwin’s first year of life. Before the age of one, we had attended over 165 medical appointments and therapies. It was exhausting and mentally very hard. This was our first child and definitely not how we had envisioned parenthood,” says Jennifer.
As Darwin has aged, her insatiable appetite has grown with her. In order to keep her safe and provide her a bit of independence in her own home, Darwin’s parents have had to put locks on the fridge and pantry. “Anywhere that food is stored needs to be locked. This helps us keep Darwin safe from overeating, as individuals with PWS have a high pain threshold and can unfortunately eat until they rupture their stomach. But it also helps Darwin manage her food-related anxiety so she doesn’t have to worry about gaining access to food and hurting herself,” notes Mark.
Food needs to be controlled and scheduled in any environment in which Darwin is present. Her school has taken great lengths to ensure food safety and open communication about food-related activities. Every meal has to be nutritious and portion controlled, as not only is Darwin always hungry, her slow metabolism requires her to need only half the typical calories of her peers – otherwise she will face life-threatening obesity and its related diseases.
Locally, on Sunday, June 9, Mark and Jennifer – in conjunction with three other Winnipeg families who are raising children with PWS, organized their second annual “One Small Step” Walk for Prader-Willi Syndrome Research at Kildonan Park. Mark reports that this year’s walk attracted 130 participants and raised over $22,000 – about $6,000 more than last year.
The funding, he reports, is being directed toward research. Clinical trials are taking place around the world to help understand the mechanisms of Prader-Willi Syndrome and investigate new treatments. One such trial is being conducted by Dr. Jennifer Miller, a professor and researcher in the division of Paediatric Endocrinology at the University of Florida in Gainesville. Dr. Miller, the world’s leading specialist in PWS, currently works with over 500 patients with Prader-Willi Syndrome from around the world, and has been working towards achieving an effective treatment for hyperphagia (insatiable hunger) for the past 12 years.
The Josephs report that research may be close to a breakthrough in developing a treatment that can minimize some of the more challenging aspects of PWS. “Right now, Darwin is in public school,” Mark notes. “She can read and write and is fairly high functioning, but she is constantly hungry and anxious about food and distracted by the desire to attain food. This obviously has a huge effect on her ability to concentrate and learn. Without treatment, she will not be able to manage the demands of high school or look forward to a career.”
“A treatment will be life-changing for her and for us as a family – she may be able to lead a full and independent future… something we never thought we’d see in the early days of her diagnosis,” adds Jennifer. “Mark himself was responsible for much of the increase in the amount of money raised at this year’s walk thanks to the extensive network of contacts that he has built up over the years through his career in the aviation industry, and as a part of the Jewish community.
“A lot of people are willing to help, but they don’t know how,” Mark observes. “Our fundraising walk provides focus for friends, family, colleagues, and even strangers who want to help.”
For Mark, this is his second go-around in Winnipeg. He previously lived and worked here in 2008. That was when he met Jennifer. He himself is originally from Toronto. He notes that his father is from Haifa and his mother grew up as part of a small Jewish community in Cornwall – which is about 90 km southeast of Ottawa. Although his wife Jennifer is not Jewish, the couple agreed to raise their children – Darwin and younger brother Edison, in the Jewish faith.
“In Ontario, we were living in an area called the Blue Mountains, two hours north of Toronto, and there was no Jewish community,” Mark notes, “So when the pandemic happened, we decided that it was time to move back to Winnipeg to be closer to Jenn’s friends and family. Knowing that there was a large and vibrant Jewish community here made the decision an easy one.”
The Josephs enrolled their son Edison in Gray Academy for junior and senior kindergarten, and then transferred him to the Brock Corydon Hebrew Bilingual program. “We want him to have a strong foundation and connection to his Jewish roots,” Mark says. And though Darwin is not enrolled in the Hebrew program, she enjoys many activities and programs through the Rady JCC. “We are looking forward to deepening our involvement in the Jewish community,”Mark adds.
Readers who would like to support the Josephs’ efforts to develop a treatment for PWS and alleviate the challenges that Darwin and those afflicted with PWS face, can do so by visiting their One Small Step fundraising page at: tiny.cc/70cpyz
To learn more about Prader-Willi Syndrome and the research being conducted you can visit: www.fpwr.ca or www.fpwr.org
Local News
Jewish Federation releases amounts to be allocated to each of its 12 beneficiary agencies
By BERNIE BELLAN I had been reporting on allocations given to the 12 beneficiary agencies of the Jewish Federation for over 11 years – until last year, when I took a break from covering our major Jewish organizations.
These past couple of months, however, I’ve gone back to looking at financial information for some of our major Jewish organizations, including the Jewish Foundation of Manitoba and Jewish Child and Family Services. (If you want to read my reports on the two Annual General Meetings held by those organizations you can find them elsewhere on this website.)

Over the years as well, I had also been adding to a table that I began to compile 12 years ago that showed comparison figures year over year for how much had been allocated by the Jewish Federation to each of its 12 beneficiary agencies. Even though I didn’t do any reporting on allocations by the Jewish Federation last year, I was able to obtain information about the 2025 allocations that I’ve reproduced in the table that you can see here. (That table only shows information for the past five years, although I do have tables showing information about allocations going back as far as 2014 that can be found on my website if anyone is interested.)
Looking at the figures for this coming year though, a couple of things stand out: For one, there will be no allocation for Aleph Bet Child Life Enrichment, just as there wasn’t one last year either. This comes after having received allocations for as long as I’ve been covering the allocations committee, so that might require some further investigation to find out why Aleph Bet Enrichment is no longer receiving an allocation. Secondly, there will be a small allocation for the Irma Penn School of Jewish Learning – as there was last year also, after a multi-year absence of the school applying for allocations. The Irma Penn School used to advertise in The Jewish Post & News when it was active, but I don’t recall seeing anything about it the past two years. At one time it was very popular among adults. It would be worth looking into how it functions these days. (Over to you, Myron. You used to write about the Irma Penn School.)
Also, the report of the Allocation Committee says: “The Jewish Learning Institute resumed their participation in the Allocations process after a hiatus of a few years to enhance their revitalized programming.” But the Jewish Learning Institute did receive funding in 2025 and 2024, so it’s not clear why the report says there was a “hiatus of a few years.” No big deal, really.
It’s always been interesting for me – and I’m sure for you, too, to look at trends: Which beneficiary agencies have been receiving the largest increases in allocations year over year or, as the case may be, the smallest increases in funding – relative to what other agencies received?
According to the report of the allocations committee, “The 2025-26 Combined Jewish Appeal Campaign raised $7,224,856 this year.”
That amount is $660,577 more than what was raised in the 2024-25 campaign, which was $6,864,279. While a portion of what was raised goes toward beneficiary agencies, another portion goes to Israel, another portion is to cover operating expenses of the Federation, and another portion goes to replenishing the Federation’s emergency fund, which was badly depleted during Covid.
Insofar as how much each of the beneficiary agencies receives,, each year the allocations committee of the Jewish Federation meets during the course of the year to decide how to allocates funds to the 12 beneficiary agencies of the Federation.
The allocations are to be given to the respective agencies on September 1.
The total amount allocated to the Federation’s beneficiary agencies is $95,700 more than what was allocated last year, and $193,600 more than what was allocated in 2024. There will be a total of $3,050,000 allocated in 2026, compared to $2,954,300 in 2025, and $2,856,400 in 2024. Interestingly, the total amounts allocated in 2023 and 2022 were higher than what were allocated in 2024 and 2025, but the allocation to Gray Academy in 2022 was exceptionally high – $974,000, compared with $900,000 this year. In 2022 Gray Academy was still dealing with the fallout from Covid and the huge increases in costs that arose from having to resort to online teaching.
As well, until this year, the most ever allocated by the Jewish Federation to its beneficiary agencies was also in 2022 – when the community was still in the grip of the Covid crisis and total allocations were $3,003,000. At that time the Federation tapped into an emergency fund that it had on hand – and totally depleted that fund.
In its report the allocations committee went into some detail explaining its methodology and how certain criteria were given special attention when it came to determining allocations.
Each of the agencies had representatives appear before the committee. Those representatives were given 15-20 minutes to make presentations to the members of the committee and answer a series of questions pertaining to eight different criteria.
Here, in summary, are the main criteria the report cites as “priorities” when it came to deciding how much to allocate to agencies:
- Social isolation and lack of belonging: “Longing for belonging,” a desire for a
stronger sense of connection to the Jewish community and Jewish identification. - Seniors Isolation: Does this program address the problem of seniors’ isolation?
- Teen Program Continuity Gaps: Gaps in programming continuity limit teen
leadership opportunities. Peer connection programs across this demographic
must be prioritized. - Building Jewish Identity and Connection: Strengthening Jewish identification
ensures every program builds Jewish community through authentic Jewish content
and context. - Poverty and Financial Barriers to Participation: Financial challenges can prevent
community members’ full participation in Jewish life. - Accessibility and Inclusion for People with Disabilities: People with cognitive or
physical challenges face barriers to full participation in Jewish life. - Exclusionary or Unwelcoming Environments: Language and practices may
unintentionally exclude interfaith families, LGBTQ+ individuals, Jews of color, and
others. - Data on Participation and Community Needs: Do you have data available on who
participates in programs, who is underserved, and what impact programs have?
Even after having subjected each of the agencies to that sort of rigorous scrutiny, however, the fact remains that the sizes of the increases given to each agency were quite consistent with what had been given in previous years.
Here, for instance, are the increases that have been given to some of the agencies for the past three years:
Gray Academy – 2026 increase over 2025: $30,000; 2025 increase over 2024: $30,000
Gwen Secter – 2026 increase over 2025: $19,000; 2025 increase over 2024: $11,500
JCFS – 2026 increase over 2025: $30,000; 2025 increase over 2024: $25,000
Rady JCC – 2026 increase over 2025: $18,000; 2025 increase over 2024: $10,000
What it all boils down to, I would suggest, is that the allocations each of those agencies received are consistent with what they had received in previous years, notwithstanding the supposedly rigorous criteria that the allocations committee says it adopted in reviewing the presentations given by each agency.
Local News
Gavin Katz: “The next great Jewish football player”
By BERNIE BELLAN Back about 15 years ago I had the idea to hire renowned sports writer Scott Taylor to write occasional columns for The Jewish Post & News. Although the great Harvey Rosen – who passed away in 2022, was still our regular sports columnist, I thought that having Scott contribute his own takes on sports might add some additional flavour to the paper.
And it did – for several years – until Covid hit and I had to pare back expenses, including for freelance writers.
Scott has kept in touch from time to time since he last wrote for us though, so it was with great delight that I received an email from him the second week in June that had in the subject line: “Next Great Jewish Athlete.”
Here’s what Scott wrote in that email: “I was talking with Fort Garry Lions head coach John Makie last night.
“Thought you might like to know about the next great Jewish football player … if you don’t know already.”

Attached to the email was a poster that was a montage of different images – all highlighting someone by the name of Gavin Katz. Part of the poster is attached here – and in it you can see all sorts of accolades for young Gavin, including his having been designated “lineman of the year” by Coach Makie last year, as well as his having captained his Pee Wee team (which is limited to players under 14 years of age).
I followed up Scott’s suggestion and contacted John Makie to try and get some comments from him about Gavin Katz, as well as contact information for Gavin’s parents.
Here’s what Coach Makie wrote to me about Gavin who, last year, was in his second (and final) year playing for the pee-wee level Fort Garry Lions:
“I’ve known Gavin Katz for a season of football. In this season, I’ve come to learn his grit, toughness and his sheer willingness to get to the ball. A lot of our players on the team would run to the ball, but Gavin sprinted. If he was challenged, he rose to the occasion. We made him our Most Outstanding Lineman not only because of his talents on the field but his leadership. He was committed to the process, he began to lead others to this through guidance and exemplary attendance.
“I am quite proud of Gavin and what he did for us this year.”
“Unfortunately, we came up just short last season, but Gavin taught us how to become a champion and the Lions will be hungry for success next season.”
“I really hope he continues to play football!”
That was high praise for Gavin Katz, indeed. During my conversation with Makie he told me that Gavin’s father was Regan Katz and that Regan was the vice-president and Chief Operating Officer of the Winnipeg Goldeyes baseball team.
I contacted Regan and asked him whether I could get in touch with Gavin. Regan gave me Gavin’s phone number, but when I tried calling him all that I got was his voice messaging. I did leave a voice message, but didn’t hear back from Gavin right away – which should come as no surprise for anyone who’s tried contacting a teenager by phone: They simply don’t use their phones for phone calling – only for texting.
So, on a Saturday morning – when I figured Gavin would probably be at home, I emailed Regan again, asking him whether he could have Gavin call me. It was 10:40 in the morning. Regan responded that Gavin was still asleep.
I wrote back: “What? I thought he’d be up jogging or doing some heavy exercise at 7 AM. What kind of pro football player is he anyway?” (Um, if you’re reading this and not familiar with my writing style, I do veer into sarcasm quite readily.)
In any event, around 11 am Gavin did call me back and we had a most pleasant conversation. After talking to him I could well understand why Coach Makie was so effusive in his praise for him.
I began by asking Gavin where he goes to school?
He said he’s currently in the French immersion program at Ecole River Heights and before that he was also in the French immersion program at Sir William Osler School. Next September Gavin will be going to Kelvin, he said.
We then began to discuss his football career. I asked Gavin when he first started to play organized football?
He said that he started playing flag football five years ago – and that he still plays flag football (which has only five players on a side, as opposed to the 12 players on a side in tackle football). Gavin added that, in addition to playing flag football – which he really loves, he noted, he also coaches and referees flag football.
Gavin’s interest in playing tackle football though, was piqued by his attending a Winnipeg Blue Bombers camp for putative young players four years ago.
“That’s when I first put on pads,” he explains.
Gavin added that he’s been going to Blue Bomber games ever since he was quite young and that, at various times he’s had the privilege of meeting such Blue Bomber greats as Adam Bighill, Nick Demski, Brady Oliveira, and Zach Collaros.
Two years ago Gavin joined the Fort Garry Lions Pee Wee level team (when he was 12).
“My first year I was on the offensive line,” he notes. “My second year (last year) I started as a linebacker, but then I was moved to the defensive line.”
Here’s a link to a clip of Gavin showing his prowess as a defensive lineman in a game last fall: Gavin in action (He’s number 50 in the video.)
Now, while Gavin was not overly tall for his age last year… he was 5’4″ and weighed 135 pounds, he was certainly big enough to play on the defensive line at the Pee Wee level.
But – talk about a growth spurt! Gavin says he grew four inches since the Lions season ended in October; he’s now 5’8″, but even more impressive – he says he’s put on another 35 pounds – and in Gavin’s case, it’s all muscle.
I asked him where he works out and he answered that the family has a home gym, which he uses assiduously, in the evenings.
Gavin says he’s ready to move up to the next level of football, which would be at the Bantam level or Junior Varsity, and that he will try out for the Kelvin Clippers when he enters Kelvin this fall. He says though that he would probably “end up on the practice roster” for the Clippers varsity team where he will be fighting for a playing role, because if he does make the team he’d be among the youngest players on the team (usually Grades 11 & 12 only).
Our conversation then turned to my asking Gavin about his family. I already knew his father’s name, I told him (and that his father was former mayor Sam Katz’s nephew), so I asked him what his mother’s name was? He said it was Mandy or Amanda and that her maiden name was Falk. Gavin also has a younger sister, Brynlee, who is eight, he said.
Gavin notes that he was bar mitzvahed last year. He’s also maintained very high marks in school, he says, getting a 91 in math and an 87 in science.
So, since Scott Taylor had billed Gavin as the “next great Jewish athlete” in his email to me about Gavin, I asked Gavin how far he wants to pursue football?
His answer was that “I’ll go as far as I can.”
Considering that he grew four inches and gained 35 pounds in less than a year, Gavin could very well be big enough soon to play on the defensive line for a team of under 16 year olds but, he says, “I like playing linebacker,” which requires a great deal more mobility than playing on the defensive line.
Still, linebackers have to combine a great many skills, including mobility, strength – and most of all, toughness, as they not only have to stop running backs, they often have to take on offensive linemen as well.
I asked Gavin what he likes most about playing linebacker? His answer: “I like hitting.” (Now, don’t take that the wrong way. It’s simply the enjoyment that many football players derive from the contact that comes with playing tackle football. And these days many young women have begun taking up tackle football for the same reason.)
But, what about injuries? I wondered. Has Gavin suffered any? I asked him.
“I’ve had a few injuries,” he answered. “I dislocated the growth plate in my elbow,” he noted and, “when I was ten I injured my achilles tendon,” he added. However, in neither case did Gavin require surgery – lucky for him.
How far into the future did Gavin see his football career headed? I asked him. He was ready with the answer: “I’d like to play for the Arizona Sun Devils” (the name of the Arizona State football team).
I told Gavin that, in past years (when I was more active as a writer) I’d profiled many young Jewish athletes for The Jewish Post & News. One of the athletes with the most potential was a young hockey player who could skate like the wind, I told Gavin, but unfortunately, he stopped growing and, as his coach at the time told me, he could teach skills, but he couldn’t teach “height.”
In Gavin Katz’s case though, since he’s only 14 and is already growing rapidly, it seem certain that his height and weight are not going to hold him back from continuing to excel at football when he moves up the ladder of stiffening competition as he grows older.
It will be interesting to check in with Gavin on a regular basis in the coming years to see how he’s progressing. Winnipeg’s Jewish community hasn’t produced too many star football players over the years, although I did mention to Gavin that I had done a story about a young man who had played for the Grant Park Pirates several years ago – and that my writing now about Gavin was going to lead me to try to look in our archives for that story to remind me who it was that I had written about – and perhaps whether I could find out anything about where he had gone with his football career.

It turned out that the young man’s name was Nahaniel Lisak and that he had been nominated for the Jewish Athlete of the Year award back in 2022 when he was 17 years old, but was already 6’2″ and weighed an impressive 295 pounds. Here’s what the Rady JCC had written about Lisak prior to that year’s sports dinner: “He was named to the CFC (Canada Football Chat) All-Canadian First Team and was the recipient of the Winnipeg High School Football League (WHSFL) Kas Vidruk Lineman of the Year. At the school level he was named the Grant Park Football Most Valuable Player and was awarded the school’s Football Captain Award. He was runner up for the 2021 WHSFL Defensive MVP & 2021 Harry Hood Citizenship Award. In grade 10 he became a known player in Manitoba and was named a Nationally ranked top 100 player in Canada, being a top 5 Manitoban and top three defensive tackle in the 2022 graduating class.”
I Googled Nathaniel Lisak to see if I could find out anything about him now and saw that he’s realized his dream of attending McMaster University (where he’s in his fourth year of Commerce) and is also a star player for the McMaster Marauders.
So Gavin, if you’re reading this – there’s a stellar example of someone whose career you could emulate. But the Arizona Sun Devils? Couldn’t you settle for the University of Manitoba Bisons? Why do our best and brightest almost always want to leave Winnipeg?
Local News
Chesed Shel Emes project to improve safety, accessibility and parking after acquiring fire-damaged property
By MYRON LOVE The Chesed Shel Emes, Winnipeg’s non-profit funeral chapel and ritual tahara house, has embarked on a new project that will enhance safety, accessibility and provide more parking opportunities.
The new project stems from the Chesed’s acquisition of the property immediately north of the chapel on Main Street at Magnus Avenue. The plan will involve the demolition of the existing house and paving of the lot. This will allow the use of a pre-existing side door in the chapel to be used to transfer coffins directly to the hearse — thus freeing some additional parking in front of the building.
Rena Boroditsky, the Chesed’s long-time executive director, points out that pallbearers will no longer have to carry coffins down the front steps but, instead, walk along a level surface and place the caskets directly into the back of the hearse. As well, the new parking lot will have room for accessible parking.
“We weren’t looking for a new project,” Boroditsky reports. “About a year ago, we learned that the family who owned the home — and had been renting it out for a number of years — was looking to sell after the property suffered a devastating fire. We seized on the opportunity rather than have a retail business open or an apartment block be built that would further complicate the parking in front of our building.”
Boroditsky notes that the finished product will take a couple of years to complete. “Permits take time,” she says. “I expect that we will be able to demolish the house in the fall and have the paving done next year.”
She estimates that the budget for the work will come to about $190,000. “We have applied to the Jewish Foundation of Manitoba and the Asper Foundation for grants,” Boroditsky reports. “We are also appealing to our many generous supporters in the community.”
She proudly points out that Chesed succeeded in raising $4-million for its most recent redevelopment program, in which the 100 year old office and tahara building was replaced with a new structure designed specifically to meet the needs of the Chevra Kadisha.
The new building includes state-of-the-art equipment for the care of the deceased — a larger tahara room with stainless steel counters, new up-to-date refrigeration, mechanical lifts for transferring bodies more safely, and enhanced safety features to improve the experience of volunteers and ensure the dignity of the deceased. The accessible facility also includes expanded storage space for caskets, shrouds, and supplies, a lending library, and private meeting spaces for mourners to gather. That project was completed five years ago.
“We are happy to report that we don’t have a mortgage,” Boroditsky says. “We have always exercised good fiscal management, and have been blessed with community support”.
Chesed Shel Emes began operations in 1930, serving all members of the community regardless of denomination, affiliation, or level of observance. No one is denied service due to financial constraints. Everyone is guaranteed a dignified funeral and burial care. The chapel was opened in 1947 as an active synagogue and community center.
“Over the past few years, we have been hosting more funerals,” Boroditsky notes, “in part because the Shaarey Zedek was closed for renovations for almost two years, and the Etz Chayim relocated to Wilkes Ave. As a result, more people were able to see that we offer a clean, warm and welcoming space.
Readers who wish to make a gift to support the “Opening New Doors” campaign can phone Rena at 204-582-5088, or visit the website at www.chesedshelemes.org New Chesed Shel Emes project will improve accessibility, allow for more parking in front

