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When a breast cancer diagnosis knocked me down, a network of Jewish women lifted me up
(JTA) — On the way home from the hospital where I was given my diagnosis of grade 2 invasive lobular breast cancer, I directed my husband, through my tears, to stop at the kosher store.
“I don’t want to see anyone right now,” I said, knowing the inevitability of running into someone we knew in the small Jewish community where we live, “so can you go in?” He pulled into the parking lot. “We need challah,” I reminded him. It was Thursday, after all. The next evening was Shabbat. Time doesn’t stand still for cancer.
My hospital appointment took place two days after the front page of the New York Times declared: “When Should Women Get Regular Mammograms: At 40, U.S. Panel Now Says.” I was 48. Breast cancer has long been the second most common cancer for women, after skin cancer. It is also the most lethal after lung cancer. Statistically, though, most women affected are postmenopausal, so unless there was a specific reason to test early, women were screened regularly from the age of 50. Now, the advice has changed. Breast cancer is rising in younger women. For women in their 40s, the rate of increase between 2015 and 2019 doubled from the previous decade to 2 per cent per year.
Why is this happening? Air pollution? Microplastics? Chemicals in our food? We don’t know.
In the days following my appointment, there was a proliferation of articles about the topic. Importantly, doctors explained that the cancer women are diagnosed with in their 40s tends to be a more aggressive type of cancer. Cancers in premenopausal women grow faster; many breast cancers, like mine, are hormone sensitive. (Got estrogen? Bad luck for you.)
When I posted the news about my diagnosis — on Facebook, because I’m an oversharing type — I was stunned by the number of friends my age, more discreet about their lives, who sent me messages to tell me they had recently gone through the same thing. Everyone had advice. “If you can do a lumpectomy, you’re very lucky. It’s not a major operation, and you’ll preserve your breast.” “Cut it all off! Immediately! Just get rid of all it and you’ll never worry again! Do you want to spend the rest of your life in mammogram scanxiety?” “Ask plastic surgeons for pictures, and pick the cutest new boobs out there. You won’t regret it.” “The radiation burns—that’s something no one ever tells you. Get yourself some Lubriderm and lidocaine, mix into a slurry, slap it on a panty liner, and tuck it in your sports bra.”
I’m not sure why I thought I was immune. Or maybe I didn’t — maybe I just never gave it much thought. Even when I found the lump on my breast, I was dismissive. I went to the doctor, and she asked if anyone in my family had had breast cancer. “Oh, who knows? They were all murdered,” I said blithely. Her eyes bugged. “In the Holocaust,” I added. “Your…mother? Grandmother? Sisters?” “Oh! No, no history of breast cancer in my immediate family.”
Add to that, my mother and sister both tested negative for the BRCA gene mutations, and that’s my Ashkenazi side. The thing is, though, most women who test positive for breast cancer have no family history of it.
But also, I’d done everything right! If you look through the preventative measures, I took all of them. I had three kids by 35, and I breastfed them. I have a healthy, mostly plant-based diet; I walk and cycle everywhere. I’m not a drinker or smoker. I eat so many blueberries!
Several of the articles that have been published in recent days are emphasizing the particular danger for Black women, with good reason: They have twice the mortality rate of white women. But as I did my research, I realized that Jewish women should also be on high alert. We’ve long known that one in forty Ashkenazi women has the BRCA gene mutation, significantly raising the risk of breast cancer (50% of women with the gene mutation will get breast cancer) as well ovarian cancer, which is much harder to detect and far more deadly. So many of my friends who reached out to me to tell me of their breast cancer experiences are Jewish; interestingly, not one has the BRCA mutation. Are these high numbers indicative or anecdotal? Are Jewish women generally more susceptible to breast cancer? This seems to be an important area of future research.
For me, that research will come too late — as did the guidance. For now, I have to accept that this cancer diagnosis is part of my life, that just as I will pick up challah every Thursday, I will wake every morning and take my hormone-blocking Tamoxifen. I will lose sleep every night about which surgery to have until I have the surgery, and then I will lose sleep every night about whether it was fully successful. And there’s plenty more in store for me that isn’t pretty; so it goes.
But here’s a good thing that’s already come out of this diagnosis: When the responses to my Facebook post flooded in, they were not only along the lines of “Refuah shleimah” and “I’ve just been through this too,” but also, “Thank you for sharing! I’m going to book my mammogram right now!”
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California Jewish groups decry antisemitic conspiracy theories printed in governor’s race voter guide
(JTA) — As Californian voters checked their mailboxes this week, they found a voter guide containing conspiratorial claims about Israel and antisemitic rhetoric.
The mailer, which was sent by California Secretary of State Shirley Weber to the households of all registered California voters, featured biographical information about candidates slated to appear in the state’s June primaries. In all, there are 32 candidates listed, of whom 10 are considered serious contenders.
Among those who are not: the far-right activist Don J. Grundmann, who is not affiliated with any party and has previously described a group he was affiliated with as a “totally peaceful racist group.” Grundman used his entry in the guide to promote a series of anti-Israel conspiracy theories and antisemitic rhetoric.
His entry claimed that Israel had been behind the murder of conservative activist Charlie Kirk; purposefully killed U.S. soldiers during an attack on the U.S.S. Liberty in 1967; orchestrated the 9/11 attacks and planned to “suitcase nuke” the United States.
“Israel, the REAL terrorists, created and funds Hamas via Qatar,” Grundmann wrote. “Countless war crimes by lsrael/ Netanyahu. No further funding for Israel. They call Palestinians AND Christians AND America ‘Amalek;—their sworn forever enemy.”
The paragraph, which included a series of links to websites promoting antisemitic materials, also included a series of antisemitic claims about Jewish supremacy.
“We are ‘goyim’ (less than human animals/cattle) that they will enslave. We are stupid chumps,” Grundmann wrote, using the Hebrew word for non-Jews that has been increasingly used by the far-right. “Israel rules our conquered Republic. Talmud—their Bible—says Christ boiling in in Israel allowed/planned/promoted Hamas attack (they murdered their own people) to justify genocide and steal billion$ in Gaza oil/gas rights. Christian Zionism = soul poison. Talmudic Judeo-Christian values’ don’t exist . . .”
In both the print version delivered to voters and the online version of the voter guide, a disclaimer was added for Grundmann’s entry that did not appear for any other candidates: “The views and opinions expressed by the candidates are their own and do not represent the views and opinions of the Secretary of State’s office.” The line also appears on the bottom of each page.
Local Jewish groups, including the Jewish Federation of Orange County, decried the inclusion of the entry, saying in a letter to Weber, “When something appears in an official voter guide, it carries a level of legitimacy and reaches millions.”
Added the groups, including the federation, the Anti-Defamation League of Orange County/Long Beach, the Jewish Community Action Network and Israeli American Council, “By including a statement containing antisemitic tropes and conspiracy theories in an official voter guide, the State has effectively provided a government platform for rhetoric that fuels division and undermines the safety and dignity of Jewish communities.”
The groups called on Weber to explain how the statement was approved. They contended that the entry violated the guidelines by making “extensive reference to third parties” and using “largely of inflammatory and conspiratorial claims unrelated to any permissible category of content” included in the provisions.
“At a time of rising antisemitism, including rhetoric rooted in antisemitic tropes in a state publication is deeply concerning,” read the letter. “This isn’t about limiting speech—it’s about enforcing neutral standards and maintaining the integrity of our election materials.”
The voter guide comes as antisemitism has emerged as a notable issue in the upcoming California governor’s race, with several candidates staking out their approach to rising antisemitism in the state at a candidate forum in February. The primary is on June 2.
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Matan Koch, disability advocate who urged Jewish communities to ‘let everyone in,’ dies at 44
(JTA) — Matan Koch needed little introduction as he rolled up to the podium to speak at his synagogue’s Disability Shabbat service in October. His wide smile and power wheelchair made him well known to many his Los Angeles congregation, Ikar.
Still, Rabbi Sharon Brous, beaming at him, described her congregant warmly before ceding the microphone.
“The most important thing for you to know about Matan is that he is a deeply soulful, profoundly decent, and incredibly kind human being. And every single day that you have been in our community, you have made our community better,” she said. “It’s an absolute joy and honor to dive in with you, to call you a friend, and to have you as a beloved member of our community.”
In the sermon that followed, Koch described times that he had felt excluded from Jewish communities, or struggled to be included, because of his own disabilities. He urged his fellow congregants to change the way they think about inclusion.
“Every time you’re looking for one more participant, one more volunteer, one more Torah reader, think about who is excluded from our community by disability or any other reason — and think about how we would be enriched if only they were here,” he said. “Then let that motivate us to create an inclusive community that truly lets everyone in.”
It was a synopsis of the mission that Koch carried with him in his personal and professional life. Koch, who used a wheelchair throughout his lifetime, and who was respected as an accomplished lawyer, a passionate advocate for people with disabilities, and a committed member of Jewish communities, died Friday in Los Angeles, after a brief but fierce battle against stomach cancer. He was 44.
“His condition declined far more quickly than he, and we, had hoped,” his family wrote as they shared the news of his death on his Facebook page, filled with remembrances from hundreds of friends and followers from across the country.
“Ever optimistic, he pushed to squeeze every drop of love and connection and intellectual engagement out of life,” they added. “Even as options narrowed, Matan remained focused on staying present and connected to the people he loved.”
At the time of his death, Koch was the Los Angeles’ ADA compliance officer and director of its disability access and services division, ensuring that the city comported with the requirements of the 1990 Americans with Disabilities Act.
In the last post he authored earlier this month, Koch expressed both anger about his illness and appreciation for the many people who were contributing to a crowdfunding campaign to allow him to die with dignity at home. He said he was feeling “fury that my life has been cut so tragically short, euphoric overwhelming at the outpouring of love and support, and awe and gratitude for my family as they work with all of you in a full court press to see my needs met.”
Born in 1981, in New Milford, Connecticut, Koch was both brilliant and precocious and from an early age moved through a world not built for his body with clarity and determination, according to Rabbi Shira Koch Epstein, one of his four siblings.
Born prematurely, he had cerebral palsy, a neurological condition that severely limited his mobility and required him to use a wheelchair.
It was just a few years after the passage of the Individuals with Disabilities Education Act, which reshaped the requirements for schools to serve students with special needs. Yet his parents, the late Rabbi Norman Koch and Rosalyn Koch, a Jewish educator, had to fight for services from their local public schools.
Koch advanced to Yale University at age 16 and went on to Harvard Law School when he was just 20, graduating in 2005. He held numerous appointments on disability rights committees, first at Yale and then as vice president of the New Haven Disability Commission. In 2011, President Barack Obama tapped him to serve on the National Council on Disability.
“His whole life was breaking glass ceilings,” Epstein told the Jewish Telegraphic Agency in a phone conversation just hours before Matan’s death.
“He had a body that was built for a world that doesn’t yet exist and he spent his whole life working to build systems that recognize ability, expand access and include people across the full spectrum of disability,” Epstein said, adding, “He sees the goodness in every person he meets, and he sees the possibility.”
The family of five kids grew up in a deeply Jewish home. Epstein recalled her younger brother having deep conversations about Jewish values and ideas with her and their father.
“That was something very important to Matan. He really loved to learn and loved to sing. He sang with gusto. And he loved camp,” added Epstein, who serves as executive director of Atra, the Center for Jewish Innovation.
Their parents were leaders at Camp Eisner, the Jewish summer camp in the Berkshires, and the family spent their summers there. “The Jewish community is his home,” she said.
Rabbi Jonah Pesner, director of the Religious Action Center of Reform Judaism and senior vice president for the Union for Reform Judaism, was the director of education at Camp Eisner when Koch was a camper. He recalled a time when Koch asked Pesner to help him to go to the bathroom.
Koch led Pesner back to the bunk and explained step-by-step, how to assist, with laughter and without making Pesner feel self-conscious. “From the earliest age, Matan was engaging, mature beyond his years and non-judgmental,” Pesner said.
After graduating from law school, Koch worked first as an associate at major law firms before striking out on his own as a consultant working to help businesses and nonprofits become more inclusive. From there, he joined a disability rights organization called Respectability, moving to Los Angeles to become its local director.
Many people assumed that because he was quadriplegic, Koch must be helpless, according to Jennifer Laszlo Mizrahi, the Jewish activist who co-founded the group, now known as Disability Belongs. In fact, she said, his abilities were remarkable.
She recalled the role Koch played during the Covid-19 pandemic, a perilous time for people with disabilities, who faced high mortality rates if they became ill from the virus.
Many of his staff were disabled. They — and countless other disabled people — couldn’t risk going to a grocery store before vaccinations were available.
Koch’s team partnered with Los Angeles and the federal government to change the regulations to allow SNAP beneficiaries to have their groceries delivered in California and in several other states. “That was huge,” Laszlo Mizrahi said.
In Los Angeles, Koch was an active and beloved member of Ikar. In his Disability Shabbat sermon, he recalled an experience in college that led him to take a deep dive into a Talmudic debate on excluding people who might be distracting from leading the priestly blessing, he told them. Ultimately, the rabbis reasoned their way into acceptance.
“In using that text, Matan acknowledged the reality of how a community might interact with someone with a disability,” recalled Morris Panitz, the congregation’s associate rabbi. “People might be uncomfortable at first. But the work of the community is to get to know the person.”
Koch delivered his sermon with conviction, but gently, with his warm smile, Panitz said. This was true of him generally. “He invited people along for the journey,” he said.
“Matan Koch left an indelible mark on our community,” the synagogue told its members in an email on Sunday that added, “Matan’s persistent belief and tireless work to ensure that everyone feels welcomed and known will endure as a moral vision in our community. We will miss Matan’s enthusiastic davening, wide smile, and generous love.”
Koch could hold court in meaningful conversations as easily with heads of businesses as with Jewish texts, said Jack Rubin, one of his closest friends since they met their first week at Yale. Until Koch could not anymore, they talked for hours at a time.
“Nothing was outside the bounds of his intellectual curiosity or his capacity to wonder,” said Rubin, whose family spent the first of Passover with Koch at Koch’s home earlier this month.
“We had seder with him, for as long as he had the energy. He asked my kids questions. It was amazing,” Rubin said, holding back tears just a few hours before Koch died.
Although Koch possessed a unique ability to persuade people to embrace inclusion and implement meaningful opportunities for disabled people, according to those who knew him well, he did face limits in his own life.
At one time, Koch hoped to attend Hebrew Union College and become a rabbi, Pesner recalled. He and others tried for a long time to make it happen. But Koch’s complex medical needs couldn’t be overcome within the school’s physical and programmatic constraints at the time.
“It’s the biggest regret of my career that we could not figure out how to get him rabbinic ordination,” Pesner said. “I think it was a loss for the Jewish people.”
Yet Koch never stopped pressing Jewish communities to rethink how they treat members with disabilities, challenging up-and-coming leaders at the Reform movement’s youth conference and being honored in 2016 by the Jewish disability inclusion organization Matan.
“Sometimes you can be a change-maker and be a person who’s putting out really big ideas, but sometimes it can come with a sharp edge,” Rabbi Rick Jacobs said in a movie compiled to honor Koch at the time, which also included a tribute from the actress Mayim Bialik. “With Matan, it comes with love, and he raises people up.”
Meredith Polsky, the director of the organization Matan, said in an email that her group would continue the mission of the friend and advocate who shared its name — a name meaning “gift” in Hebrew.
“Though his final breath came far too soon, we carry that charge forward, committed to building a Jewish community that reflects his vision of true inclusion and belonging,” Polsky wrote.
Koch’s father Norman died in 2015. Koch is survived by his mother, Rosalyn Koch, siblings Rabbi Shira Koch Epstein and Jason, Yonatan Koch, Adina Koch and Aytan Koch; nieces and nephews Amichai, Kobi, Avigayil, Duncan and Jason and his honorary family: Martin Smith, Jack and Stephanie Rubin and their children Olivia and Edward.
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Assault outside synagogue and rock thrown through Judaica shop window ratchet up Toronto Jews’ concerns
(JTA) — A pair of incidents took place outside of Jewish sites in the Toronto area over the weekend, adding to a series of attacks that have left the city’s Jewish community unnerved.
During Shabbat services on Saturday, a man tried to force his way into the Sephardic Kehilah Centre, in the suburb of Vaughan. After the man was turned away by security, he reportedly encountered a father and son on their way to the synagogue and punched the father in the face. The father was left with no serious injuries.
The following day, photos circulated after a rock was hurled and broke the window of Aleph Bet Judaica, a shop on the heavily Jewish Bathurst Street corridor. Police did not confirm which business was hit, but confirmed that a rock was thrown at a business near Bathurst Street and Regina Avenue, and that the Hate Crime Unit “was consulted and is aware.”
No suspects have been identified in either incident.
Unlike other recent attacks on Toronto synagogues and Jewish businesses, which were carried out late at night, these two incidents took place in broad daylight, both around 9:30 a.m.
The UJA Federation of Greater Toronto wrote in a statement that the Sephardic Kehilah Centre incident, which is being investigated by the police’s Hate Crime Unit, reflected “a continued pattern of antisemitic violence targeting our community.”
In March, three synagogues across the Toronto area were hit with gunfire. In the last couple of months, a restaurant owned by a Jewish pro-Israel advocate was shot at twice, at two of its locations. And in 2024, a Jewish girls’ elementary school was hit by gunfire on three separate occasions.
“As these incidents become more normalized, they erode public safety and our way of life as Canadians,” the UJA’s statement read. “This cannot be tolerated.”
The Canadian Jewish News reported that the suspect was turned away by synagogue security on Saturday for “suspicious behavior,” according to an email from the rabbi, and told security that he was Middle Eastern and not there for prayer services. After the man left the building, according to the email, he threw away torn pieces of paper which looked to contain verses of Psalms.
B’nai Brith Canada blasted “people in positions of authority” who it says have “responded with hesitation, weak enforcement, and political platitudes while Jewish communities continue to pay the price.” It also thanked Vaughan Mayor Steven Del Duca, who wrote that “we must be vigilant and do everything possible to support and protect our Jewish residents.”
The group called for the federal government to take eight specific actions to combat antisemitism, including establishing a national antisemitism task force, providing emergency funding for the protection of Jewish institutions, and prosecuting the repeated gunfire attacks as acts of domestic terrorism.
On Monday, B’nai Brith also released its annual audit of antisemitic incidents, which found that there were 18.6 antisemitic incidents reported per day across Canada in 2025, a 9% increase from 2024.
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