Uncategorized
Hereditary cancers aren’t just a women’s problem. Jewish men need to take precautions too.
Bill Harris, a veteran Los Angeles photojournalist, didn’t think much of it when one morning in 2012 he woke up and found a tiny blood spot on the T-shirt he’d slept in. The next morning, he found blood in the same place on his chest — and went straight to his computer.
“Online, I could find only three things that would cause a man’s nipple to discharge blood: being an avid runner, which I wasn’t; having a subtropical fungus, which I didn’t; and breast cancer,” he said. “That was a pretty big shock.”
Harris, then just a few weeks shy of his 61st birthday, immediately called his doctor, who ordered a mammogram and ultrasound. They confirmed a cancerous growth in his right breast. Ten days later, a biopsy came back positive. The next month Harris got a right mastectomy, followed by the removal of his left breast half a year later.
“I walked into a woman’s imaging center and had to get into a pink paper robe,” he recalled. “All the women in the waiting room were staring at me.”
Like many other Ashkenazi men, Harris never had considered that he might have been born with a harmful mutation of the BRCA gene, which elevates the risk not only of breast cancer, but also of melanoma and prostate, ovarian and pancreatic cancer.
“Hundreds of other mutations in the BRCA gene are just as dangerous, but they’re not specific to Ashkenazim,” said Dr. Robert Sidlow, director of the Male BRCA Genetic Risk Program at New York’s Memorial Sloan Kettering Cancer Center. About 1 in 40 Ashkenazi Jews (those of Eastern European descent) carries the harmful mutation, compared to about 1 in 400 in the general population.
“The vast majority of patients I see are relatives of women who have breast or ovarian cancer and then get tested,” he said. Of BRCA mutation carriers, Sidlow added, “Most men are pretty happy to enroll in some kind of surveillance program once they get over the initial shock.”
Sidlow is on the Men’s Leadership Council at Sharsheret, the national Jewish nonprofit organization that educates the community about cancer risks and supports those with breast cancer and ovarian cancer.
Elana Silber, CEO of Sharsheret (Hebrew for “chain”), says it’s crucial that men with a family history of cancer undergo genetic counseling screening for BRCA and other hereditary cancer mutations.
Genetic testing is possible via a standard blood or saliva sample.
While Sharsheret is primarily considered a women’s organization, it has been using November — nicknamed Movember for its focus on men’s health — for an awareness campaign focused on Jewish men’s cancer risks.
“This is not only a women’s issue,” Silber said. “Family history is so important. When a man shares his family history with his doctor, he may not realize that he should mention that his mother had breast cancer or that his sister had ovarian cancer, as these are not generally ‘men’s diseases.’ They are not aware that these cancers could mean that they themselves are at increased risk for cancer and that they can pass on these mutations to the next generation – their daughters and their sons.”
If someone discovers he (or she) is a carrier of one of the genetic mutations with elevated cancer risks — not just BRCA but also such mutations as ATM, TP53, CHEK2, and PALB2 — there are various precautions they can take for themselves and their children. They can monitor their own health more closely, they can get encourage their children to test to see if they are carriers and, for any future children, take steps to prevent the mutated genes from being passed down.
For example, couples can conceive via in vitro fertilization, or IVF, and then test the embryos before implantation to ensure that only those unaffected by the genetic mutation are implanted.
While most women are aware of the risks of breast cancer, men generally are not — even though the disease strikes 2,500 men in the U.S. every year and kills about 500 of them, according to Sidlow. About 1-2% of men with the BRCA1 mutation and 6-7% of men with the BRCA2 mutation will develop cancer by age 80.
“This is why we recommend periodic mammograms starting at about age 50 for men who carry a BRCA2 mutation,” Sidlow said. “We like to educate these men on how to check their chests once a month and have a clinician do a breast checkup on them once a year.”
Since the BRCA1 and BRCA2 mutations also make prostate cancer more likely, men with either mutation should get PSA (prostate-specific antigen) levels in their blood tested annually beginning at age 40, rather than 50, the age at which screening generally begins, Sidlow said.
Sharsheret has been promoting the importance of learning one’s family history, genetic counseling and screening among both men and women. The 20-year-old organization also runs various peer support networks, offers financial assistance to cancer patients, provides mental health counseling and guidance to patients, caregivers, and their friends, and seeks to educate the broader Jewish community about cancer risks and support.
Peggy Cottrell, a certified genetic counselor at Sharsheret, said men in general are more reluctant to get regular checkups than women.
Ashkenazi Jewish men are at elevated risk not just of breast and prostate cancer but also of pancreatic cancer. Pancreatic cancer is particularly difficult because it’s tough to detect early enough and hard to treat. The five-year survival rate is only 11%. About 2% of BRCA1 carriers and 4% of BRCA2 carriers will develop pancreatic cancer, Sidlow estimated.
“Usually by the time pancreas cancer is clinically detected it has already spread microscopically to the liver,” Sidlow said. “But pancreas cancer is potentially curable if caught when the tumor is extremely small.”
Even among those with elevated risks, certain behaviors can improve one’s odds, such as avoiding obesity, smoking and excessive alcohol consumption.
Harris, the California photojournalist, is still fighting at age 71. While he overcame breast cancer 10 years ago, last year he was diagnosed with ampullary cancer, a rare disease related to his BRCA2 status that was discovered thanks to his participation in a UCLA study. Surgeons have removed his gall bladder, half his pancreas and part of his small intestine, and he has had to endure eight rounds of chemotherapy.
“I’m still working through the aftereffects of the chemo. I have to eat smaller quantities than before and take enzymes to supplement my digestive processes,” Harris said.
Meanwhile, his 37-year-old son discovered that he, too, carries the BRCA2 mutation, and he had a double prophylactic mastectomy and reconstruction at age 30 — just to be on the safe side.
“If there’s any history of breast, ovarian or prostate cancer in your family, get tested genetically so that you’re informed,” Harris advised. “Diagnoses happen way too late for men, and the danger is too big.”
—
The post Hereditary cancers aren’t just a women’s problem. Jewish men need to take precautions too. appeared first on Jewish Telegraphic Agency.
Uncategorized
Muslim and Sephardic Jewish college students are connecting over shared heritage
Joseph Pool, a senior at Rollins College in Florida, grew up hearing his Moroccan-born grandparents describe Mimouna, a traditional Moroccan Jewish celebration marking the return to eating chametz after Passover. Because Jewish families had cleared their homes of chametz for the holiday, Muslim neighbors would bring over fresh flour, butter, and milk, and together they would enjoy a chametz-filled meal.
Amid rising campus tensions after October 7, Pool decided to host a Mimouna event of his own at Rollins College, and Muslim students showed up in droves.
“I spent years sleeping over at my grandparents’ house and hearing stories about the connection Muslims and Jews shared in Morocco,” Pool said. Seeing Muslim classmates embrace the celebration, he recalled thinking: “Wow, this is still the case today. There is still this connection ability here.”
At a moment when Jewish-Muslim tensions have intensified on campuses nationwide, some Sephardic and Muslim students say shared cultural heritage, rather than formal interfaith programming, is opening unexpected space for connection.
SAMi (Sephardic American Mizrahi Initiative) hosts Sephardic cultural programming on 16 college campuses across the country, including Persian music karaoke nights, hamsa painting events, and Mimouna celebrations. According to Manashe Khaimov, SAMi’s founder and CEO, roughly 10% of the 6,000 students the organization has engaged are Muslim.
The events are not intended to be spaces for interfaith dialogue, and that is a big part of their appeal. “Students don’t want to show up to an interfaith event unless [they’re] interested in political dialogue,” said Khaimov. Rather, students who are just looking for a place to engage with their culture show up to listen to the kind of music they grew up with, eat familiar foods, and hear Arabic or Farsi spoken.
For many Muslim students, SAMi events “smell the way it smells at home” as opposed to many Jewish spaces on college campuses that can feel “foreign” or “alienating,” said Khaimov. “For most of the Muslim students,” he said, “this is the first time even walking into Hillel spaces.”
Emily Nisimov, a Bukharian student from Queens College who organized Sephardic heritage events on her campus with SAMi, said, “The point of the events originally was to spread love and intimacy between Jewish students.” To her surprise, Muslim students started showing up. “Maybe they did just come for the food,” she said, “but the fact is that they stayed and they interacted with us and they tried to find a middle ground, which I was really impressed and shocked by.”
These connections are not limited to organized programming. Across campuses, Muslim students say friendships with Sephardic and Mizrahi peers have reshaped their understanding of Judaism, and Jewish students say the friendships have changed them, too.
Ali Mohsin Bozdar, a Muslim student at Springfield College who met Sephardic students through Interfaith America’s BRAID fellowship, said, “Jewish people from Middle Eastern backgrounds — most of the culture is similar. The food, the music, the language. I found that really fascinating,” he said. “It automatically binds you.”
Yishmael Columna, a Moroccan Jewish student and SAMi organizer at Florida International University, said the exchange has been mutual. “After Oct. 7”, he said, “it’s easy to give in to hate.” But getting to know Muslim peers complicated that instinct. “I wouldn’t be able to form opinions on many things as well as I do now if I didn’t have these conversations with them,” he said.
Sofia Houir, a Moroccan Muslim senior at Columbia University, said she had never met a Jewish person before attending college. Forming close friendships with Sephardic students on Columbia’s campus changed that. “Having friends who are Middle Eastern Jews definitely made Judaism more personal to me,” she said. “You can read about Judaism, you can study it, but talking to friends about how they grew up made me realize that, regardless of our religion, we’re all North African or Middle Eastern.”
Sofia formed a particularly close bond with an Iraqi Israeli student, Orpaz Zamir, during her time at Columbia, which she says deeply influenced her decision to travel to Israel for the first time. “Orpaz played a huge role in me going to Israel, just because I’m super close to him. And I really, really wanted to discover his culture, and to discover his country,” she said.
But that decision came with consequences.
Sofia said that her friendships with Jewish and Israeli students as well as her decision to travel to Israel caused peers in the Muslim and Arab communities on campus to stop speaking to her.
“I had some heated arguments with people who basically argued with me as if I was representing the Israeli government,” she said. “The frustrating thing was that they never had a conversation with me about it. They just presumed that me going was me validating Netanyahu’s politics or betraying the Palestinians.”
Nisimov said campus tensions at Queens College, part of New York City’s public university system, have not disappeared simply because of a heightened awareness of shared culture.
After October 7, she said, “A lot of claims were made that we should go back to where we came from.” “We tried to explain to them — just like you, we came from the same spot — but they didn’t want to listen.”
Even so, she said, her personal friendships have endured outside the realm of discourse on the Israeli-Palestinian conflict. “My Muslim friend and I, we’re not really on the political level of conversation,” she said. “But we have plenty of conversations about our cultures and our religions and the differences and similarities.”
Rethinking Jewish Whiteness
For some students, these relationships have also challenged assumptions about Jewish identity and, thus, the tenor of political conversations.
Mian Muhammad Abdul Hamid, a Muslim student from Syracuse University, told the Forward that he “thinks the majority” of Muslim students on his college campus believe Jews only come from Europe. “When people think Jewish, the first thing that pops up is European.”
Bozdar agreed. “When I met these people, it confirmed for me that there are Jews from the Middle East,” he said. “Until you meet people, nothing is for sure.”
Columna recalled participating in a tabling event about Israel shortly after Oct. 7, when a Muslim student approached him to talk. The two later became friends. Weeks later, Columna asked why he had approached him rather than the other nearby Jewish students.
“He told me, ‘I decided to talk to you because, in contrast to the Ashkenazi Jews nearby, you were the only one who looked brown,” Columna said.
“I feel that sometimes the reason why these conversations do not work is because Muslim students don’t feel that Jews are even part of the Middle East,” said Columna. “Once you break that wall, and you find a common ground,” he said, “it becomes a more productive conversation.”
Zamir, an Iraqi Jewish student at Columbia University, described a similar experience. Though initially nervous about enrolling amid campus tensions, he said, “I never felt I was being attacked for my views.”
A Muslim friend later told him it was because he was seen as “from the region.”
“If you are Mizrahi,” Zamir said, “Muslim students respect what you say a bit more because if you’re from the region, you’re entitled to be there.”
But that dynamic also raises uncomfortable questions about which Jewish students are seen as having legitimate perspectives on campus.
“There’s this extreme position that Ashkenazi Jews shouldn’t be there or shouldn’t have this view because they’re ‘colonizers,’ but you’re okay because you’re part of the region,” he said.
“Unfortunately, this is the case, but it also makes my interactions with them easier,” he added.
While several students said their conversations about their shared background remain at the cultural level rather than getting political, Pool believes shared meals can create space for conversations that lean on these shared identities.
“If you share a meal with someone, you start with something in common,” he said. “You have the same food, maybe then you have the same family tradition of how to cook this food. And then suddenly, when you’re talking about politics, you can talk about just a political issue versus it being your entire identity.”
The post Muslim and Sephardic Jewish college students are connecting over shared heritage appeared first on The Forward.
Uncategorized
The one Jewish value everyone should hold dear in the age of AI
As friends, relatives and even colleagues dive headlong into our AI future, I’ve been stuck nervously on the platform’s edge. I’m not a skeptic of technology by nature, but by experience. I’ve watched too many shiny new toys come along, promising to make society smarter or better connected, only to become superspreaders of confusion, alienation and disenfranchisement.
So when you tell me a machine can summarize any book, draw any picture or write any email, my first thought is going to be, What could possibly go wrong?
This, too, was the reaction of the Haredi rabbis who declared a communal fast over AI last month.
“If at the push of a button, I can get a hold of a d’var torah for my Shabbos meal from AI, to us, that’s a problem,” a Haredi leader told me at the time. “No, no — I want you to open the book and read it and come up with a question and come up with an answer. That’s part of what’s holy about learning Torah. It’s not just end result. It’s the process.”
Curious about their logic, I spent some time tracking down Lakewood’s gedolim to learn more. This was no straightforward task — I found it easier to get a hold of their wives than the great rabbis themselves. Even at dinner hour, these titans of Torah study were still in the beit midrash. But eventually I got through to three — thanks to my cousin Jeffrey, who knew a rav who knew a rav — and that was fortunate, because I came away with the Jewish skeleton key to our brave new world.
That key is the Jewish value of עֲמֵילוּת (ameilut), or toil. As far as Jewish values go, ameilut is an obscure one. It lacks the celebrity swagger of its better-known peers like chesed and tzedakah or the political power of tikkun olam. It was never associated with a biblical matriarch or carved into a golem’s forehead. Yet I believe it is just as crucial. Yes, toiling is a mitzvah. And in the age of AI, ameilut can be a human road map.
The word’s root appears a couple dozen times in the Hebrew Bible — unsurprisingly, it’s a recurring theme in Job — but its salience comes not from the Torah but from commentary on Leviticus 26:3, which establishes ameilut as a sacred endeavor. When God implores Israel to “walk with” the commandments, Rashi, an 11th century rabbi whose commentaries are considered authoritative, reinterpreted this to mean that God wants Jews to be ameilim b’torah — toiling in Torah study. He is reinterpreting God’s command that we walk and move forward to also mean that we should take time to stand still, turn over (and over) the same words to find new meaning and view getting stuck as a sign of progress.
For Haredim — who pronounce it ameilus — the notion that struggle can be its own reward underpins a life spent poring over sefarim in the beit midrash (and missing phone calls from the Jewish press). It follows that ChatGPT, which transforms knowledge from something developed to something consumed, is anathema to their approach. They’ve realized that making learning easy has actually made learning hard.
To be sure, the goals of the Haredi world are not exactly the same as mine. Those communities are famously insular, wary of the internet and especially cognizant of secular society’s pernicious influence. I’m basically the opposite: I love to mix it up (including with Haredi Jews) and am extremely online. A little narishkeit is good for the soul, as far as I can tell.
But I’ve found that ameilut-maxxing translates pretty well to non-religious life, too. It’s an imperative to embrace the challenge. As a notoriously limited chef, I’m now toiling in cookbooks; as a writer, I can cherish the blank page. Reframing the hard part as the good part, then, is a reminder that the toil is actually our divine right. Because ameilut is something AI can’t experience, replicate or understand. It is the very essence of what it means to be alive.
The post The one Jewish value everyone should hold dear in the age of AI appeared first on The Forward.
Uncategorized
Mistrial Declared in Case of Students Charged After Stanford Anti-Israel Protests
FILE PHOTO: A student attends an event at a protest encampment in support of Palestinians at Stanford University during the ongoing conflict between Israel and the Palestinian Islamist group Hamas, in Stanford, California U.S., April 26, 2024. Photo: REUTERS/Carlos Barria/File Photo
A judge declared a mistrial on Friday in a case of five current and former Stanford University students related to the 2024 pro-Palestinian protests when demonstrators barricaded themselves inside the school president’s office.
Twelve protesters were initially charged last year with felony vandalism, according to prosecutors who said at least one suspect entered the building by breaking a window. Police arrested 13 people on June 5, 2024, in relation to the incident and the university said the building underwent “extensive” damage.
The case was tried in Santa Clara County Superior Court against five defendants charged with felony vandalism and felony conspiracy to trespass. The rest previously accepted plea deals or diversion programs.
The jury was deadlocked. It voted nine to three to convict on the felony charge of vandalism and eight to four to convict on the felony charge to trespass. Jurors failed to reach a verdict after deliberations.
The charges were among the most serious against participants in the 2024 pro-Palestinian protest movement on US colleges in which demonstrators demanded an end to Israel’s war in Gaza and Washington’s support for its ally along with a divestment of funds by their universities from companies supporting Israel.
Prosecutors in the case said the defendants engaged in unlawful property destruction.
“This case is about a group of people who destroyed someone else’s property and caused hundreds of thousands of dollars in damage. That is against the law,” Santa Clara County District Attorney Jeff Rosen said in a statement, adding he sought a new trial.
Anthony Brass, a lawyer for one of the protesters, told the New York Times his side was not defending lawlessness but “the concept of transparency and ethical investment.”
“This is a win for these young people of conscience and a win for free speech,” Brass said, adding “humanitarian activism has no place in a criminal courtroom.”
Protesters had renamed the building “Dr. Adnan’s Office” after Adnan Al-Bursh, a Palestinian doctor who died in an Israeli prison after months of detention.
Over 3,000 were arrested during the 2024 US pro-Palestinian protest movement, according to media tallies. Some students faced suspension, expulsion and degree revocation.