Local News
Winnipegger Mark Joseph leading efforts to fund treatment for rare genetic disorder that afflicted his daughter
By MYRON LOVE It’s not likely that many readers are familiar with Prader-Willi Syndrome (PWS), but it is a condition that Mark and Jennifer Joseph know all too well, as their ten-year-old daughter, Darwin, lives with this disorder.
Prader-Willi Syndrome is a rare life-threatening genetic disorder that occurs in approximately one out of every 15,000 live-births. PWS affects many aspects of an individual’s life. A particular symptom is a relentless and insatiable hunger.
“We were fortunate that we were living in Toronto when Darwin was born so that we had access to many, many specialists and the Hospital for Sick Children,” says Mark, a pilot with Westjet who moved to Winnipeg in 2021. Immediately at Darwin’s birth the doctors knew there was something atypical about Darwin. The room flooded with specialists to assess and treat the newborn, who was labelled “failure to thrive,” as she was as limp as a rag doll, and wasn’t crying. “This was definitely one of the scariest and most traumatic experiences of our lives,” adds Mark.
“The hospital’s lead paediatrician had no experience with PWS, but remembered hearing of it. Genetic testing began, and by one-month-of-age, we had a definitive diagnosis of Prader-Willi Syndrome – a diagnosis that would change the trajectory of our lives,” notes Jennifer.
“Darwin’s diagnosis required us to become experts in her condition,” says Mark, who is the newly installed President and Chair of the Foundation for Prader-Willi Research Canada. “Most medical professionals have never encountered anyone living with it. We had to learn all we could to best advocate for our daughter so that we could have the best possible outcome for her future.”
“Darwin’s early years were filled with therapies – physical therapy, occupational therapy, speech therapy, hippotherapy, even feeding therapy, as an infant due to her low muscle tone. We still have therapies, but nothing like in Darwin’s first year of life. Before the age of one, we had attended over 165 medical appointments and therapies. It was exhausting and mentally very hard. This was our first child and definitely not how we had envisioned parenthood,” says Jennifer.
As Darwin has aged, her insatiable appetite has grown with her. In order to keep her safe and provide her a bit of independence in her own home, Darwin’s parents have had to put locks on the fridge and pantry. “Anywhere that food is stored needs to be locked. This helps us keep Darwin safe from overeating, as individuals with PWS have a high pain threshold and can unfortunately eat until they rupture their stomach. But it also helps Darwin manage her food-related anxiety so she doesn’t have to worry about gaining access to food and hurting herself,” notes Mark.
Food needs to be controlled and scheduled in any environment in which Darwin is present. Her school has taken great lengths to ensure food safety and open communication about food-related activities. Every meal has to be nutritious and portion controlled, as not only is Darwin always hungry, her slow metabolism requires her to need only half the typical calories of her peers – otherwise she will face life-threatening obesity and its related diseases.
Locally, on Sunday, June 9, Mark and Jennifer – in conjunction with three other Winnipeg families who are raising children with PWS, organized their second annual “One Small Step” Walk for Prader-Willi Syndrome Research at Kildonan Park. Mark reports that this year’s walk attracted 130 participants and raised over $22,000 – about $6,000 more than last year.
The funding, he reports, is being directed toward research. Clinical trials are taking place around the world to help understand the mechanisms of Prader-Willi Syndrome and investigate new treatments. One such trial is being conducted by Dr. Jennifer Miller, a professor and researcher in the division of Paediatric Endocrinology at the University of Florida in Gainesville. Dr. Miller, the world’s leading specialist in PWS, currently works with over 500 patients with Prader-Willi Syndrome from around the world, and has been working towards achieving an effective treatment for hyperphagia (insatiable hunger) for the past 12 years.
The Josephs report that research may be close to a breakthrough in developing a treatment that can minimize some of the more challenging aspects of PWS. “Right now, Darwin is in public school,” Mark notes. “She can read and write and is fairly high functioning, but she is constantly hungry and anxious about food and distracted by the desire to attain food. This obviously has a huge effect on her ability to concentrate and learn. Without treatment, she will not be able to manage the demands of high school or look forward to a career.”
“A treatment will be life-changing for her and for us as a family – she may be able to lead a full and independent future… something we never thought we’d see in the early days of her diagnosis,” adds Jennifer. “Mark himself was responsible for much of the increase in the amount of money raised at this year’s walk thanks to the extensive network of contacts that he has built up over the years through his career in the aviation industry, and as a part of the Jewish community.
“A lot of people are willing to help, but they don’t know how,” Mark observes. “Our fundraising walk provides focus for friends, family, colleagues, and even strangers who want to help.”
For Mark, this is his second go-around in Winnipeg. He previously lived and worked here in 2008. That was when he met Jennifer. He himself is originally from Toronto. He notes that his father is from Haifa and his mother grew up as part of a small Jewish community in Cornwall – which is about 90 km southeast of Ottawa. Although his wife Jennifer is not Jewish, the couple agreed to raise their children – Darwin and younger brother Edison, in the Jewish faith.
“In Ontario, we were living in an area called the Blue Mountains, two hours north of Toronto, and there was no Jewish community,” Mark notes, “So when the pandemic happened, we decided that it was time to move back to Winnipeg to be closer to Jenn’s friends and family. Knowing that there was a large and vibrant Jewish community here made the decision an easy one.”
The Josephs enrolled their son Edison in Gray Academy for junior and senior kindergarten, and then transferred him to the Brock Corydon Hebrew Bilingual program. “We want him to have a strong foundation and connection to his Jewish roots,” Mark says. And though Darwin is not enrolled in the Hebrew program, she enjoys many activities and programs through the Rady JCC. “We are looking forward to deepening our involvement in the Jewish community,”Mark adds.
Readers who would like to support the Josephs’ efforts to develop a treatment for PWS and alleviate the challenges that Darwin and those afflicted with PWS face, can do so by visiting their One Small Step fundraising page at: tiny.cc/70cpyz
To learn more about Prader-Willi Syndrome and the research being conducted you can visit: www.fpwr.ca or www.fpwr.org
Local News
This man – Michael Kalo – has been defaming prominent Winnipeggers online for years, but now he’s getting a taste of his own medicine
By BERNIE BELLAN (Posted May 3, updated May 8, updated May 11) There’s a particularly ugly side that often comes with being in the public eye – and that’s being on the receiving end of some of the most vile and awful comments, often threats – sometimes on social media, sometimes in emails, and sometimes on websites.
For years now many prominent Winnipeggers (almost all of them Jewish) have had to endure just that kind of vicious attack from someone by the name of Michael Kalo. But how do you fight back against someone who writes some of the most awful things – and then sends them out to various members of the media (including me), all the while hiding behind a series of aliases? There’s no point in suing him for defamation; he’s penniless. (The police have seized his computer in the past and are well aware of him, but the individuals whom he has defamed have always been reluctant to have the Crown press charges, thinking that it will only draw more attention to him – which is what he seems to want.)
But I’m different – and I’ve finally had enough of his crap.
In my original column I had posted the email Kalo had sent out to a great many individuals in which he defamed Jacob Brodovsky, who was forced to resign as co-executive director of BB Camp after a website called the j.ca launched a series of attacks on Jacob over his perceived “anti-Zionist” attitudes. I suppose these days who defines “Zionist” is a decision made by certain individuals who reserve for themselves the right to define what support for Israel means. I guess all those hundreds of thousands of Israelis who have been marching on the streets protesting Netanyahu’s deliberate strategy of letting the remaining hostages linger in tunnels in Gaza – however many may still be alive) are also “anti-Zionist.”
Anyway, I’ve now removed that vile email. If anyone still wants to see it, email me at jewishp@mymts.net and I’ll send it to you.
Something else I’ve now removed from this article is my referring to Michael Kalo’s very accomplished daughters. My intention was to attempt to induce them to use their influence to sway their father to stay off the internet and stop defaming members of Winnipeg’s Jewish community. But then I received an email from a prominent member of our community who asked me to remove my references to Michael Kalo’s daughters. That person wrote, in part: ‘His daughters don’t have anything to do with him. They don’t talk to him.”
Well, if his daughters don’t want anything to do with him, then I suppose there’s no point in retaining what I had written about them – so that’s gone too.
What’s left now though is a video of Michael Kalo that gives anyone who has never heard of him – or seen him in pubic, a clear idea of what type of person he is.
The video that was sent to me shows Kalo engaging in an argument with someone (and the identity of that person was not revealed to me by the person who sent me the video.) In it you can hear Michael explain why he’s consistently called Ben Carr a “kike”, “a spoiled Jew boy,” along with some other choice epithets. (Kalo has sent out numerous emails defaming Ben Carr using the name “Mohammed Greenberg” as the sender.)
But, I did respond to Kalo, whom I’ve know for many years, starting with when he achieved notoriety by being banned from entering the Asper Campus over 30 years ago. Here’ what I wrote to him:
“You know what I’m going to do Michael. I’m going to print your letter on my website – but I’m going to say that it was sent by someone named Michael Kalo, who has been defaming various Winnipeg Jews for years. That way it will have the opposite effect of what you’re intending. I’m also going to post the video in which you call Ben Carr (and the person filming the video) a kike. And if you want to come after me the way you’ve been going after anyone and everyone who provokes your ire, go right ahead. (You seem to have a real hate on for successful Winnipeg Jews. Is it because you’re such a failure in life yourself?) And I’m going to bcc this email to some of the people you’ve been defaming so that they can see how much of a fool you”ve been making of yourself for years.
-“Bernie”
Here’s the video of Michael (who is apparently walking away with a Ben Carr sign tucked under his arm):
Local News
Rabbi Matthew Leibl’s Friday afternoon service at Simkin Centre has grown in popularity
By BERNIE BELLAN In November 2023 I published a story in The Jewish Post & News about the first-ever Friday afternoon “Erev Shabbat” service at the Simkin Centre, which was held October 27, 2023.
It was an opportunity for me to see how much of an impact the newly spiritual care aide at the Simkin Centre, Rabbi Matthew Leibl, was having on residents. But that was in 2023 – only 2 years after the Simkin Centre had emerged from the most harrowing period in its history.
As you may recall, when Covid 19 began to spread in early 2020, it was personal care homes across Canada that were hit hardest – and the Simkin Centre was not spared the ravages of Covid. A total of 11 residents passed away at the Centre in 2020 and 2021.
Another result of the Covid epidemic was that the number of non-Jewish residents at the Simkin Centre jumped by quite a large number during the epidemic. Here are some figures showing how many more non-Jewish residents moved into the home by 2021 than had been there previously:
2017 – 67 non-Jewish or 33.5%
2018 – 63 non-Jewish or 31.5%
2019 – 71 non-Jewish or 35.5%
2020 – 61 non-Jewish or 30.5%
2021 – 86 non-Jewish or 43.0%
According to Laurie Cerqueti, CEO at the Simkin Centre, as of May 2, 2025, 44% of the residents are non-Jewish while 56% are Jewish.
Rabbi Leibl had been hired in the spring of 2023. His hiring was enabled by a grant from the Jewish Foundation of Manitoba. Here is how the Foundation explained what its purpose was in making a grant to the Simkin Centre for the hiring of a full-time spiritual care aide:
“I know how important spiritual care is in our type of setting,” said Laurie Cerqueti, Simkin Centre CEO. “For our residents, our families, and our community.”
Since she took over the CEO role, Laurie’s thoughts had been directed to ‘How can we serve our people even more than we are now? How can we make this bigger and better?’
This sparked the idea that someone should be brought in to look at what they were doing regarding spiritual care to see where gaps and opportunities lay to develop the program.
The Simkin Centre hired Rabbi Matthew Leibl as the person to fill the role, someone Cerqueti thought would be a perfect fit f for what they’were hoping to do.
“As I spoke with Matthew about this opportunity, we see it as an opportunity to make a significant difference for the residents and their families,” said Cerqueti.
This interaction with the Simkin Centre is not Rabbi Leibl’s first. He has been involved with the Simkin Centre for over 15 years, first working there at age 21. That year, he did concerts three times per week for the residents.
“I found that the music and performing was an incredible way to connect with the people there,” said Rabbi Leibl.
He recalled a story from that time frame where he was performing Oseh Shalom, and one resident who had been, to that point, without her memory and less present, began to mouth the words along with him. The song helped her break through what she had been dealing with.
“That moment was truly a game changer for me. I’m so excited to be able to give back to a place that helped people in my own family and was a great place for me while I was figuring out my way many years ago,” said Rabbi Leibl.
“Simkin is such a special place, and what they’re doing there is awesome.”
In the year and a half since I was present at Rabbi Leibl’s first ever Friday afternoon service at the Simkin Centre much has changed. Most of the new residents who have moved into the centre have, once again, been Jewish. But, in recognition of how many residents are not Jewish the centre has begun offering services for different denominations as well. The May calendar of events lists a Catholic Mass, an Anglican service, a Christian Bible Study, and a Hymnsing.
But it was Rabbi Leibl’s Erev Shabbat service I was interested in seeing again – some 18 months after the first service he had conducted, to see whether it had changed – and how many residents came to watch.
The atrium of the centre was filled with residents on Friday, April 26 – quite a few more than that October 2023 service. The increased number of attendees was also a reflection of how many more of the centre’s residents, once again, are Jewish. (In case you weren’t aware, if there’s a vacant unit at the Simkin Centre and someone who is Jewish is on the wait list to gain admission into the centre, that individual will be given first crack at moving into the centre. I had been told by Laurie Cerqueti that the 14 most recent new residents in the centre were all Jewish.)
There was one other aspect to Rabbi Leibl’s service which was brought to my attention. One of the residents at the Simkin Centre, Carol Manishen, also has a son living in a Shalom Residence: Josh Manishen. When Carol’s husband, Wayne, saw me at that Friday service he told me that he often comes early with Josh – before the start of the regular service at 4:00 pm, and Josh sings various Hebrew prayers, accompanied by Rabbi Leibl on the keyboard. To watch a video of Josh singing, click here:
Two more things to add though: First, Rabbi Leibl is now a regular participant on a podcast that is put on by CJN (what used to be known as the Canadian Jewish News) called “Not In Heaven.” You can find it simply by Googling CJN and scrolling down under the Podcasts link.
Also, since Rabbi Leibl and I go a long way back – and we both have a fond taste for sarcasm, he singled me out from among the audience and said to everyone there: “We’ve even got a reporter from the Jewish Post here.”
I couldn’t help but respond – in my usual facetious manner, that I was there to do an exposé.
To which, Rabbi Leibl retorted: “You can call it “Sex, Drugs, and Candlesticks.” Hmm, I wonder how much more there is about the Simkin Centre that I haven’t learned yet?
Local News
Well, that didn’t take long…BB Camp Board announces hiring of two new co-directors
(Posted April 27) In a span of a little more than two weeks, BB Camp has gone from parting ways with one of its co-executive directors, Jacob Brodovsky, to the hiring of two new co-directors. (We have been attempting to ascertain the status of Lexi Yurman, who was also camp co-executive director with Jacob – who also happened to be her husband, and who is now on maternity leave. Would she be entitled to return as co-executive director once her maternity leave is up, we wonder?)
The BB Camp board released a press release announcing the new hires at 12:42 pm today. Interestingly, there is no mention whether the positions that are to be filled by the two individuals, Sarah Gould and Aliza Millo, are to be permanent or temporary. Also, the two women are referred to as co-camp directors, not co-executive directors. Is there any significance to that, we wonder? Since no one from the BB Camp board has responded to any questions we have posed to them since this whole mess began, we won’t hold our breath waiting for answers to any of the questions we’ve just asked here either.
Here is the complete text of the BB Camp board announcement:
Dear BB Camp Community,
On behalf of the Board, we wanted to let you know that we acknowledge that the last week has caused much stress and uncertainty. We have felt it too and have been working very hard to ensure that the summer season unfolds as we all expect.
We are extremely excited to share with you that our 2025 summer senior Camp leadership team is now in place!
Please give a BB Camp W-E-L-C-O-M-E to Sarah Gould and Aliza Millo!
Sarah Gould: co-Camp Director (Wilderness and Operations)
Sarah is returning to BB Camp as co-Camp Director (Wilderness and Operations). Sarah’s history with BB Camp stretches back decades. She spent many formative summers on Town Island—as a camper, counselor, canoe instructor, and AC out-tripper. After BB, she took her skills to Camp Hatikvah in BC, where she helped develop and expand their wilderness and out-tripping program. Sarah has an intimate knowledge of wilderness programming, the importance of integrating Jewish values into outdoor education, and as camp alumni and a current camp parent, has a clear understanding of our community’s interests and hopes for BB Camp’s future.
Sarah has been fortunate to spend every summer of her life at Lake of the Woods. Her family cottage is on Channel Island, directly across from Town Island. She has strong ties to our Lake of the Woods neighbours and an ability to navigate the lake and Kenora. Sarah also was a key volunteer on the Friends of Town Island campaign, through which Camp was able to successfully partner with the Nature Conservancy of Canada to have Town Island designated as a protected area—ensuring its legacy for generations to come.
Professionally, Sarah has years of experience in education, research, and community organizing. She taught anthropology and international development at Trent and the University of Toronto and now works as a researcher and consultant in health studies. In her community life, she leads a neighborhood organization in Toronto, where she has spearheaded grassroots initiatives—from building a skating rink to coordinating with city officials and local stakeholders on community improvement projects. Sarah is also active in the Jewish community, including advocacy for Israel and supporting students facing antisemitism on campus.
Sarah is excited to be returning to Town Island and the BB Camp family for an amazing summer of 2025.
Aliza Millo: co-Camp Director (Programs)
Aliza’s history with BB Camp dates back decades as well. She spent many years at Camp as a camper, counselor, section head, and LTP Coordinator. After Camp, Aliza pursued a career she felt was most adjacent to working at Camp and transitioned into the classroom. She moved to Toronto to pursue her education degree, where she also completed a Jewish Education Certificate at York University.
For the next seven years, Aliza taught at the Toronto Heschel School, a school dedicated to tikkun olam and social justice, with a particular focus on environmental stewardship and sustainability. While there, Aliza taught grades three through seven, with a greater focus on the upper elementary years, teaching Judaics, Hebrew, and General Studies in a pluralistic, integrated setting.
After 10 years in Toronto, Aliza was happy to move back home to Winnipeg. Aliza met her future husband David Azuelos at BB Camp many years ago; to get a sense of how important BB Camp is to Aliza, she had her wedding on Town Island. Since her return to Winnipeg, Aliza has worked at St. John’s-Ravenscourt School, teaching Grade 4, cultivating an environmental leadership team at the Junior School level, and even bringing groups of Grade 4 and 5 students to Town Island for Outdoor Ed. Aliza has also helped organize and fundraise for Kendra’s Walk, a student-led initiative at SJR supporting teens living with cancer.
Aliza’s true passion lies in building community, whether in the classroom or at Camp. Since her time as a camper, she has enjoyed returning to the island for Work Weekend, volunteering in the kitchen, and serving on the Alumni Committee ahead of the 70th Alumni Weekend. She is most passionate when working with children and believes in strong communication with parents to build meaningful and supportive relationships. Having worked in a kindergarten to Grade 12 school setting, she has enjoyed maintaining lifelong relationships with students and families in the community.
Aliza is excited to be bringing her two boys, Judah and Dubie, to Camp. She is thrilled to be returning in this position — working with and mentoring the already incredible staff, and helping to foster deep and meaningful connections to Jewish values, traditions, and culture. Aliza looks forward to helping build a strong, nurturing community where every camper feels a sense of comfort, belonging, and pride in who they are — and in being a BB Camp camper.
***
The Camp Board of Directors is grateful that Sarah and Aliza, two lifelong BB Campers who together have an exceptional skill set, will be leading our community’s beloved Camp this summer. We are looking forward to another great Camp summer, full of amazing Camp memories. We will be reaching out directly to Camp families with more information. Please bear with us as our new leadership team gets up to speed and starts working with our current staff. Reach us at info@bbcamp.ca
Ed.note: Here’s a comment we received through our “contact us” link: (Readers of this website should be aware that it is run independently of The Jewish Post newspaper. I will forward any comments sent to me that are meant to be letters to the editor of the paper, but the proper email address for the paper is contact@thejewishpost.ca)
Letter to the Editor re BB Camp
I am a former member of the Board of BB Camp and served as Board Chair for a number of years. I am disgusted in the manner in which the current Board responded to to the public assassination of its Executive Director by dishonest Israeli extremists in our community. I am equally disgusted that what should have been a private internal human resource issue at the Camp was made public by the Board through its e-mails to the community which essentially made it impossible for the Executive Director to continue in his position and which likely tarnished his reputation. All I can say that is that I hope Jacob received a large monetary settlement from BB Camp.
-Irwin Corobow
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