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Winnipegger Mark Joseph leading efforts to fund treatment for rare genetic disorder that afflicted his daughter

The Jospeh family (clockwise from top left): Mark, Jennifer, Edison, Darwin

By MYRON LOVE It’s not likely that many readers are familiar with Prader-Willi Syndrome (PWS), but it is a condition that Mark and Jennifer Joseph know all too well, as their ten-year-old daughter, Darwin, lives with this disorder.
Prader-Willi Syndrome is a rare life-threatening genetic disorder that occurs in approximately one out of every 15,000 live-births. PWS affects many aspects of an individual’s life. A particular symptom is a relentless and insatiable hunger.
“We were fortunate that we were living in Toronto when Darwin was born so that we had access to many, many specialists and the Hospital for Sick Children,” says Mark, a pilot with Westjet who moved to Winnipeg in 2021. Immediately at Darwin’s birth the doctors knew there was something atypical about Darwin. The room flooded with specialists to assess and treat the newborn, who was labelled “failure to thrive,” as she was as limp as a rag doll, and wasn’t crying. “This was definitely one of the scariest and most traumatic experiences of our lives,” adds Mark.
“The hospital’s lead paediatrician had no experience with PWS, but remembered hearing of it. Genetic testing began, and by one-month-of-age, we had a definitive diagnosis of Prader-Willi Syndrome – a diagnosis that would change the trajectory of our lives,” notes Jennifer.
“Darwin’s diagnosis required us to become experts in her condition,” says Mark, who is the newly installed President and Chair of the Foundation for Prader-Willi Research Canada. “Most medical professionals have never encountered anyone living with it. We had to learn all we could to best advocate for our daughter so that we could have the best possible outcome for her future.”
 “Darwin’s early years were filled with therapies – physical therapy, occupational therapy, speech therapy, hippotherapy, even feeding therapy, as an infant due to her low muscle tone. We still have therapies, but nothing like in Darwin’s first year of life. Before the age of one, we had attended over 165 medical appointments and therapies. It was exhausting and mentally very hard. This was our first child and definitely not how we had envisioned parenthood,” says Jennifer.
As Darwin has aged, her insatiable appetite has grown with her. In order to keep her safe and provide her a bit of independence in her own home, Darwin’s parents have had to put locks on the fridge and pantry.  “Anywhere that food is stored needs to be locked. This helps us keep Darwin safe from overeating, as individuals with PWS have a high pain threshold and can unfortunately eat until they rupture their stomach. But it also helps Darwin manage her food-related anxiety so she doesn’t have to worry about gaining access to food and hurting herself,” notes Mark.
Food needs to be controlled and scheduled in any environment in which Darwin is present. Her school has taken great lengths to ensure food safety and open communication about food-related activities. Every meal has to be nutritious and portion controlled, as not only is Darwin always hungry, her slow metabolism requires her to need only half the typical calories of her peers – otherwise she will face life-threatening obesity and its related diseases.
Locally, on Sunday, June 9, Mark and Jennifer – in conjunction with three other Winnipeg families who are raising children with PWS, organized their second annual “One Small Step” Walk for Prader-Willi Syndrome Research at Kildonan Park. Mark reports that this year’s walk attracted 130 participants and raised over $22,000 – about $6,000 more than last year.
The funding, he reports, is being directed toward research. Clinical trials are taking place around the world to help understand the mechanisms of Prader-Willi Syndrome and investigate new treatments. One such trial is being conducted by Dr. Jennifer Miller, a professor and researcher in the division of Paediatric Endocrinology at the University of Florida in Gainesville. Dr. Miller, the world’s leading specialist in PWS, currently works with over 500 patients with Prader-Willi Syndrome from around the world, and has been working towards achieving an effective treatment for hyperphagia (insatiable hunger) for the past 12 years.
The Josephs report that research may be close to a breakthrough in developing a treatment that can minimize some of the more challenging aspects of PWS. “Right now, Darwin is in public school,” Mark notes. “She can read and write and is fairly high functioning, but she is constantly hungry and anxious about food and distracted by the desire to attain food. This obviously has a huge effect on her ability to concentrate and learn. Without treatment, she will not be able to manage the demands of high school or look forward to a career.”
 
“A treatment will be life-changing for her and for us as a family – she may be able to lead a full and independent future… something we never thought we’d see in the early days of her diagnosis,” adds Jennifer. “Mark himself was responsible for much of the increase in the amount of money raised at this year’s walk thanks to the extensive network of contacts that he has built up over the years through his career in the aviation industry, and as a part of the Jewish community.
“A lot of people are willing to help, but they don’t know how,” Mark observes. “Our fundraising walk provides focus for friends, family, colleagues, and even strangers who want to help.”
For Mark, this is his second go-around in Winnipeg. He previously lived and worked here in 2008. That was when he met Jennifer. He himself is originally from Toronto. He notes that his father is from Haifa and his mother grew up as part of a small Jewish community in Cornwall – which is about 90 km southeast of Ottawa. Although his wife Jennifer is not Jewish, the couple agreed to raise their children – Darwin and younger brother Edison, in the Jewish faith.
“In Ontario, we were living in an area called the Blue Mountains, two hours north of Toronto, and there was no Jewish community,” Mark notes, “So when the pandemic happened, we decided that it was time to move back to Winnipeg to be closer to Jenn’s friends and family.  Knowing that there was a large and vibrant Jewish community here made the decision an easy one.”
The Josephs enrolled their son Edison in Gray Academy for junior and senior kindergarten, and then transferred him to the Brock Corydon Hebrew Bilingual program. “We want him to have a strong foundation and connection to his Jewish roots,” Mark says. And though Darwin is not enrolled in the Hebrew program, she enjoys many activities and programs through the Rady JCC. “We are looking forward to deepening our involvement in the Jewish community,”Mark adds.
Readers who would like to support the Josephs’ efforts to develop a treatment for PWS and alleviate the challenges that Darwin and those afflicted with PWS face, can do so by visiting their One Small Step fundraising page at: tiny.cc/70cpyz
 To learn more about Prader-Willi Syndrome and the research being conducted you can visit: www.fpwr.ca or www.fpwr.org

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Rachel Fish, leader in combating antisemitism in academia, this year’s Kanee Distinguished Lecture series speaker

By MYRON LOVE The Jewish Heritage Center of Western Canada would  seem to have hit another home run with the announcement that Dr. Rachel Fish, a leading voice in tackling anti-Zionism and Jew hatred in North American academia, is this year’s guest speaker at the JHCWC’s upcoming annual Sol and Florence Kanee Distinguished Lecture – which is scheduled for Thursday, April 30, at the Shaarey Zedek Synagogue.  
The theme of her timely lecture will  be“How the Academy Has Created a Fertile Ground for Antisemitism,” a topic in which she is well versed.  Fish has an impressive resumé. She is the co-founder of the nonprofit “Boundless,” a think tank partnering with community leaders across North America to revitalize Israel education and take bold collective action to combat antisemitism.  She also serves as Director for The Brandeis University President’s Initiative on Antisemitism; is an associate research professor at the Cohen Center for Modern Jewish Studies; and teaches Israeli history and society at The George Washington University as Visiting Assistant Professor of Educational Leadership in the Graduate School of Education and Human Development.
In the past, she has served as Senior Advisor and Resident Scholar at the Paul E. Singer Foundation in New York City and Executive Director of the Schusterman Center for Israel Studies, where she trained the next generation of academics in the field of Israel Studies. She has also served on the faculty at Brandeis University, George Washington University, and Harvard University. She has has written articles for several publications in the mainstream press and academic journals, and co-edited the book “Essential Israel: Essays for the 21st Century.”
I had the pleasure of speaking with Dr. Fish a couple of weeks ago. My first question to her was how she finds the time to do all that she does.  Her response is that there are not enough hours in the day. Her multiple activities remind me of an expression I heard once years ago while I was a member of a short-lived Jewish international development group – “if you want to make sure something gets done, you give it to the busiest person you know.”
Fish observes that she has been explaining Judaism to non-Jews all of her life.  “I was raised in Tennessee in  a place called Johnson City in the foothills of the Smokey Mountains,” she recounts. “My parents were originally from Ohio.  There were very few Jews where we lived. My family spent a lot of time teaching our neighbours, teachers in my school  and others we associated with about Jews, our practices and the State of Israel.”
She recalls – as early as 2001 when she was studying at Harvard’s Divinity School, that she was noticing what she describes as a “strong undercurrent of anti-Israel feeling and Jew-hatred”.
“I was determined to pursue a career in higher education,” she notes, “in part because I believe that education matters, because I derive oxygen from teaching, and I particularly enjoy dealing with complex issues.  As well, I appreciate the opportunities that teaching at the university level gives me to share what I have learned in public forums such as the Kanee Lecture.”
Ideally, she observes, a professor should not – as much as humanly possible – be sharing her political or personal opinions in class. Higher education should be about creating a space where students can debate freely and challenge each other’s ideas.  Instead (as I am sure many readers are aware), too many educators are focused on indoctrinating their students in the teacher’s beliefs – with students with dissident opinion facing hostility and risking ostracism.
Too many universities have become ideological monocultures where critical thinking is discouraged and there is a litmus test for new hires.  She cites a FIRE (Foundation for Individual Rights and Expression) report in which an overwhelming majority of the faculty at many  leading universities share a leftist – anti-Israel, anti-Christian and anti-Conservative worldview.
That is particularly true with Ivy league and other elite universities in both the United States and Canada – and especially in their liberal Arts and Humanities programs. Much of the anti-Zionist and antisemitic atmosphere – such as the takeover of university quadrants in the wake of October 7 – has been created by outside agitators and foreign funders – notably the oil rich Islamic sheikhdom of Qatar.
“Where you have universities with strong administrative leadership,” she points out, “the level of hostility to Jewish students and threats of violence have not been allowed to take root.  It has only been the case where the administration and the board are weak.”
So why, I asked her, do so many Jewish students not seek out alternatives to these compromised campuses?. She responded that some Jewish students have chosen to enrol in universities in the southern United States where there is a more welcoming environment.
But many Jewish students, she observes, continue to enrol in leading universities such as Harvard and Yale, Cornell and UCLA (or York or the University of Toronto in Canada). Many Jewish students still share the belief that being identified with being affiliated with a  top flight university will benefit their future careers.
Sadly, she further points out, this poison has filtered down to the K-12 level. Many university education departments have graduated numerous indoctrinated teachers who have taken control of school boards and administrations and seek to impose their vile doctrines on susceptible young minds.    
Nevertheless, there are a great many state and lesser known universities  that provide a more welcoming attitude to Jewish students.    
Rachel Fish suggest that, for too long, North American Jewish communities have been complacent and not recognized the danger in our midst.  She does see some hopeful signs though.  She has observed that more and more communities, parents and student s have woken to the danger and begun to fight back.
“It’s difficult,” she acknowledges.  “It can feel overwhelming.  But we have to keep chipping away and not just let the other side win.” 
 
The Sol and Florence Kanee Distinguished Lecture series was inaugurated by the Jewish Heritage Centre of Western Canada in 2006 to celebrate Sol Kanee’s 95th birthday. In welcoming the audience to that first lecture, lecture series co-chair Harold Buchwald paid tribute to Kanee, who died on April 23 at 97, as a man who “cast a giant shadow” on world Jewish history in the second half of the 20th century.  The former resident of Melville, Saskatchewan, who spent almost all of his adult life in  Winnipeg, Kanee was a leader in the development of Israel and the Free Soviet Jewry movement as well as a macher in our Jewish community and across Canada.
 I would encourage readers who may be interested in learning more about the current state of antisemitism in academia – and want to support the JHCWC to go online at jhcwc.org for further information or to order tickets. The price of admission is $50.

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Young tech entrepreneur Adam Fainman gathering accolades locally and internationally

By MYRON LOVE Winnipegger Adam Fainman is taking the world by storm. In fewer than three years his new AI start-up – Moonlite Labs – has attracted thousands of users in 550 cities in 95 countries world wide.
 
As he explained in an interview in the Winnipeg Sun last June, Moonlite Labs is “a creative content platform designed to make multimedia storytelling radically more accessible. With a few prompts,” he noted, “users can generate professional grade videos, animations, voiceovers, talking avatars, music-reactive visuals, and more.”
 
On Tuesday, February 24, the young entrepreneur garnered his newest accolade when Winnipeg-based North Forge, Canada’s only start-up incubator, accelerator and fabrication lab, gave Fainman its DARE Emerging Innovator Award at a reception at the Royal Aviation Museum of Western Canada.
 
“I dedicated the award to my zaida, Jacob T. Schwartz,” Fainman says, noting that his zaida was a prominent computer scientist and professor of Computer Science at the New York University Courant Institute of Mathematical Science, and founder, in 1964, of New York University’s Department of Computer Science – which he chaired for 16 years.

At the awards evening, Fainman adds, he had the opportunity to meet many of the movers and shakers in the industry here.
 
The son of Shane and Rachel Fainman began his life in Toronto. “My father is from Winnipeg, my mother from New York.  They met in the Sinai Desert at a music festival.”
 
The family moved to Winnipeg in 2006 when Adam was in high school.  After graduating from the University of Winnipeg Collegiate he went on to earn a B.Sc. in Computer Science from the University of Winnipeg.
 
“Performing was always my first love” he says.
 Post university, he began a career as a rapper, beatboxer, and producer under the stage name Beatox, touring across Canada and central Europe with his rare ability to combine story-telling and singing.
 
In 2015, he enrolled in a two-year digital media and design program at Red River Community College. After graduation, on the encouragement of a University of Toronto professor, he continued his studies in Toronto earning a Masters Degree in Music Technology and Digital Marketing.
 
“During the Covid shutdown,” he recounts, “I began experimenting with AI and producing music videos combining music, story-telling and animation.  I posted them on social media sites such as YouTube and TikTok. They went viral, garnering millions of views.  People were asking me if I could help them with creating similar videos.  I saw there was a gap in accessibility to this technology, so I decided I should create a platform as a solution”
 
“A friend of mine, Brayden Bernstein was involved in the tech scene in Winnipeg, saw the success I was having on TikTok and gave me some advice on how to go about this” Fainman continues.  “As well, a few colleagues from the University of Winnipeg expressed interest in building a solution together.”
 
Wanting to create a platform that would make it easy for others to replicate what he was doing, Fainman sought out resources in Winnipeg that might be able to help him.
 
He pitched his idea first to NRC-IRAP (National Research Council of Canada Industrial Research Assistance Program), Canada’s leading innovation assistance program for small and medium-sized businesses,
 
“They loved the concept and traction I was getting, and agreed to help fund us,” Fainman says.
  
His next stop was North Forge – in 2024 – where Moonlite joined their Ascent Program and was matched with mentors.
 
In early 2025,  Moonlite Labs made its official debut at the Manitoba AI Innovation Showcase where the new company was greeted with an award. “It was a massive confidence boost,” Fainman told the Sun in that earlier interview. “It was our first time sharing with the public what we’ve been up to for the last year. To win the award… that was very, very rewarding.”
Last June, the company made its presence known on the international stage at VivaTech 2025 in Paris — Europe’s largest startup and tech conference, with over 180,000 visitors.
Moonlite was selected as one of TechCrunch’s Top 30 Startups of the Year, a shortlist that included only two Canadian companies.

“Getting the AI Showcase award, getting into VivaTech, being selected as one of the top 30 startups of the Year by TechCrunch, that was pretty crazy,” Fainman told the Sun.“Backed by ScaleAI, Moonlite joined Canada’s official delegation at VivaTech, which had special visibility this year with Canada named Country of the Year at the conference.
“We had a massive space. The French president came through our whole area. It was the craziest thing,” Fainman recalled. “Everyone had their phones. It was like a mob… then we’re like, oh my God, it’s the French president. People were freaking out.”
 
As per the Sun story, Fainman was given two days to showcase Moonlite, with a booth for both the platform’s business-to-business (B2B) and business-to-consumer (B2C) offerings. But the most personal moment came on stage, where he delivered a presentation showcasing his journey from beatboxing artist to tech founder. 

With Moonlite Labs growing exponentially, Faiman and his team of eight are hoping to become as ubiquitous as Adobe and Canva.  “My ultimate goal is to help as many people as possible to create professional-grade videos and ultimately share their stories,” he comments.
 
He himself, he adds, is hoping to get back to live performances as well.  “I recently appeared at Festival du Voyageur and I have just completed my 4th studio album.  I can’t wait to use Moonlite for all my videos and world building” he reports.
 
Readers who might want to try Moonlite for themselves can go to https://moonlitelabs.com
You can get in touch with Adam Fainman at adam@moonlitelabs.com

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Richard Morantz and Sheree Walder fund new MBA degree, annual real estate symposium, at Hebrew University

By MYRON LOVE Last October, the husband and wife team of Richard Morantz and Sheree Walder donated $1 million towards the Shaarey Zedek Synagogue’s ongoing capital campaign.  Last month, the couple followed up with an equally generous donation – this time to the Canadian Friends of the Hebrew University, to establish a new degree program in real estate through the Hebrew University’s business school.
“We are long time supporters of the Canadian Friends of the Hebrew University,” notes Walder, who is a lawyer and former partner in the firm Myers LLP.
“We had funded some smaller projects at the Hebrew University, adds Morantz, the president and CEO of Globe Property Management, one of Canada’s leading privately-held residential real estate firms.
(Globe was founded in the 1920s  by Richard’s grandfather, Morris.  Richard became the company’s sole shareholder in the mid-1990s after buying out his father Saul, and his siblings. Under Richard’s leadership, the company has expanded steadily and strategically, acquiring and developing real estate almost every year for the past three decades. Over the last 30 years, he has built an impressive and diverse portfolio, which includes over 8000 residential and commercial properties, particularly notable given that Globe remains privately owned and independently operated.
“Two years ago, we approached the (Hebrew) University about doing something more impactful.  Since I am a businessman in real estate, we wanted to work on a project with the business school.”
The first fruits of the relationship between  Richard and Sheree and the university was the establishment the annual Richard Morantz Real Estate Symposium in the Hebrew University Business School (HUBS) MBA Program.
“I was able to attend the most recent symposium in November,” Morantz reports.  “I wanted to see for myself how this was working.”
Morantz also used the occasion to arrange – with the help of CFHU executive director (and former executive director of the JNF office here) Rami Kleinmann – a meeting with HUBS officials about building on the symposium and creating a new MBA program at the university.
The Richard Morantz Major in Real Estate and Finance, in the words of Business School President Dr. Orly Sade, “will, together with traditional academics, feature non-academic practitioners and leaders in all aspects of the real estate industry, providing students an opportunity to expand their professional networks, while gaining real-world industry insights and bridging the gap between theory and practice.
In a press release issued on February 24, Seade added that “this investment is a defining moment in the evolution of the school.  The importance of an academic discipline focused solely on the real estate sector has significantly increased, owing to an understanding of the sector’s unique position in the global economy and international finance. HUBS consistently ranks within the top five business schools in Eurasia & the Middle East. The addition of this major will further elevate HUBS academic offerings, and the annual symposium will help expand the Hebrew University and Israel’s footprint as a global hub for intellectual exchange in the sector, drawing diverse professionals from around the world, fostering cross-border collaboration, increasing visibility, and contributing to the potential to attract top-level investors.”
 
Kleinmann further pointed out that “Richard’s comprehensive industry knowledge, combined with his dedication to Israel and the University, has resulted in an innovative academic program that, combined with the Symposium, is setting a new benchmark for industry education. We are all extremely grateful and look forward to the outcomes.”
As reported in the Jewish Post in relation to the couple’s donation to the Shaarey Zedek, Morantz noted that it was the Hamas-led assault on Israel and subsequent tsunami of antisemitism worldwide that prompted Richard and Sheree to consider stepping up and contributing to the Shaaray Zedek campaign in such a magnanimous way.
“I have never been a religious person,” Morantz remarked. “While I may be more secular, I strongly believe in the traditions of Judaism. I had a charmed upbringing in the 60s and 70s in River Heights. It is not the case that I experienced no antisemitism, but those experiences were very minimal. Post-October 7th, I found myself, for the first time in my life, having to judge every situation and every person I came across before divulging the fact that I am Jewish or discussing Israel. I came to the realization, during the process of considering this donation, that a primary driver for us is that this synagogue is a safe place for Jews, where we can comfortably be ourselves.”
Walder pointed out that, while her mother’s large family were Jewish pioneers, her father was a Romanian Holocaust survivor, with almost no family after the war. “Family matters a great deal to us,” she said, “in addition to strongly agreeing with Richard that the tragedy of October 7th and continuing and growing antisemitism are big drivers for us in making these donations.”
“There will be an event celebrating the new MBA program at the Hebrew University’s Board of Governors meeting in June,” Morantz says.  “We are looking forward to attending.”

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