Features
In new book, well-known psychologist argues that autism is grossly over-diagnosed
Book review by TOBY KLEIN GEENWALD Dr. Shoshana Levin Fox has authored a book that will hold you spellbound. Section I is titled “Children.” These first eight chapters are the stories of Jack, Sasha, Annie and others (all the children’s names used are pseudonyms) – children who came into the Feuerstein Institute after having been diagnosed as autistic. They exited with new hope, not only for themselves, but for their parents, who were usually devastated by their children’s diagnoses and needed their own emotional propping up.
The central theme of this book is that autism is grossly over-diagnosed. Levin Fox is a psychologist and play therapist who has worked with children for more than 30 years. In addition to lecturing and giving workshops in North America, Israel and Europe, she worked for 25 years in the prestigious Feuerstein Institute of Jerusalem, founded by the late Sorbonne-educated Professor Reuven Feuerstein.
Dr. Levin Fox lived for nearly twenty years in Canada. She completed an M.A. at Simon Fraser University and a Doctorate in Counselling Psychology at the University of British Columbia and worked for many years as a counsellor in the Special Services to Children program of the Vancouver Association of Neighbourhood Houses. Levin Fox was awarded a SSHRC (Social Sciences and Humanities Research Council of Canada) post-doctoral fellowship, which enabled her to do research and practical work in the field of autism at the world-renowned Feuerstein Institute in Jerusalem. Coincidentally, for many years Hadassah WIZO Canada were the prime funders of the Feuerstein Institute’s programs related to autism.
I warmly recommend the book, not just for the moving stories of the children who were salvaged from what proved to be inaccurate assessments, and not only for the intriguing descriptions of the practices of the world-renowned Feuerstein Institute, which Dr. Levin Fox combined with the wonders of the DIRFloortime method. This book should be read for its critical message to parents who have received an autism diagnosis for their son or daughter: Believe in your child. Talk to your child. Keep looking till you find her the best and most appropriate help and hope. Don’t let the “experts” get you down, because a true expert will find the formula to lift you – and your child – up.
Most importantly, do not assume that an expert who gave you an assessment of autism, that may feel like an emotional-cognitive death sentence, is right, and even if the assessment is accurate, and the child is truly autistic, that does not mean there is no hope.
This book is not only for parents of children with autistic symptoms; there is a message here for all parents: Even when there is a diagnosis of less daunting conditions — such as learning disabilities, ADHD, or other emotional, cognitive or developmental challenges — keep shopping till you find the professional who will light the way through the tunnel.
The idea of plasticity of the brain, writes Levin Fox, entered mainstream medicine several generations after Prof. Feuerstein had intuited and created materials and methods based on that reality. “There were no sacred cows for the Professor,” she writes, and decries the fact that “the diagnosis of autism is used as a sacrosanct truism…I have found that the term ‘autism,’ as it appears commonly in the field, in actuality is being used to describe children who suffer from a vast range of communication difficulties, from extreme shyness to psychotic conditions and just about everything in between.”
It is not clear to her how research studies can be reliable, writes Levin Fox, “with the current diagnostic criteria of autism so elastic and with the use of the term so liberal.”
The children whose stories are recounted in this book all made significant, even dramatic, progress. Levin Fox writes that, “Not every child began to speak fluently, to learn at a normative level and to play happily with friends…However, it can be safely and honestly stated that, inspired and mentored by the Professor, my colleagues and I made a huge difference in the lives of hundreds of children originally thought to be autistic.” She sees them, as a team, as having saved many lives.
Feuerstein sought to find the child’s latent strengths, and what he called “islets of normalcy.” She explains how “islets of normalcy” are identified and worked with. They include, among other elements, eye contact, human relationships, symbolic play, curiosity, humor and more. “The notion of islets of normalcy helps both parent and practitioner recognize the non-symptomatic behavior [of autism symptoms], the sparks of life and the glimmers of normative functioning within a child’s autistiform presentation.”
There was five-year-old Jack, whose parents came to the Institute and Levin Fox discovered in him an engaging child with a rich imagination. His parents told her that, as he had verbal communication problems, they had taken him to be tested and had been told he was autistic.
Levin Fox emphasizes that helping the parents to understand their children’s challenges, and not to be fearful and depressed about them, is part of the battle.
At the Institute Jack thrived, and left the early diagnosis of autism far behind. The details of the process are in a fascinating ten-page chapter.
She writes about a little girl, Annie, who clearly had developmental difficulties, but, “Each of a child’s tangible, visible symptoms is a world in itself. Like the shoots of a green plant, symptoms have intricate roots.”
Levin Fox gave the parents tools to work with their daughter and continued to follow her progress. When she met her again at the age of six, she wrote, “The sweet, charming, warm, open and communicative child…bore no trace of the detached, imploded, silent, starving two-and-a-half-year-old of years ago.”
Then there was Davie, who had “a longer journey,” and teenaged Joe, who did not make progress to the same extent as some of the other children, but who years later was a happy, functioning adult living in a group setting with other mildly impaired adults. And Mikey, who began to improve significantly when his parents began to talk to him. He still had a long way to go, but Levin Fox writes, “I learned never to give up on a parent.”
There was Max, who had oral dyspraxia, and his lack of speech had been “misunderstood as an autistic avoidance of speech…his story…dramatically illustrates the tragedy of this kind of misdiagnosis.” She cautions that children’s hearing should always be tested; sometimes the non-responsive child is discovered to be simply hearing-impaired.
In Part II, “Theoretical Groundings,” Levin Fox gives the intense and thorough theoretical background to the success stories, which are plentiful. Six more case studies are interwoven in the text to help bring the theory alive.
This section also describes the fascinating roots of Feuerstein’s methods. He began by working with orphan children who had been traumatized after WWII, decided there were flaws in the standard diagnostic tests, and rather than focusing on performance, he focused on the child’s ability to develop learning processes.
“Current studies on brain plasticity…scientifically substantiates what [Feuerstein] proposed two generations ago – that brain cells are modifiable and respond to the stimuli of the environment.” She writes that for Feuerstein it was an “I told you so” moment.
“He understood that human beings can change…when the environment anticipates and promotes such change.” The children mentioned earlier “markedly diminished their autistic-like symptoms…We believed that the potential was there. We sought it. And when we could not see it, we worked hard to elicit it, and even to create new facts on the ground.” The staff saw themselves as warmly interactive mediators.
One of my favorite stories appears in Chapter 15, “A Paradigm Shift,” where Levin Fox describes in great detail the captivating case history of Ben, whom she first met when he was five-years-old. The end of the chapter, with the sub-heading, “Ben’s Epilogue,” describes a chance meeting between Levin Fox and Ben’s parents, many years later, at the luggage carousel in the arrival area of the airport. “Dr. Shoshana!” they called out, and his mother pulled out her cellphone. “The happy faces of Ben and his wife, holding their newborn son, smiled back at me,” writes Levin Fox. “For Ben, the paradigm-shift had indeed been life-saving.”
I found other words to describe the journeys and the miracles of the children portrayed in this book: life-affirming.
And hope.
“An Autism Casebook for Parents and Practitioners: The Child Behind the Symptoms” is published by Routledge, Taylor & Francis and available on Amazon. Read more about Dr. Shoshana Levin Fox’s work at: https://shoshanalevinfox.com/
Toby Klein Greenwald is an award-winning journalist, educational theater director, teacher and the editor-in-chief of WholeFamily.com.
Features
The Magic of DNA
By GERRY POSNER This is my story, but it just as easily could have been yours. Even at my older age, a new relative popped into the family. This was unexpected to me and the whole family and indeed the new family member as well.
Put the blame on or credit to DNA. What transpired I suspect is happening all over the world these days. That is, there is now a new first cousin in the family. Call her KBP. It seems that KBP took a test through ancestry.com not that long ago, just as I had done years ago. When you take the test, you end up receiving messages from Ancestry from time to time identifying people who have similar genetic markers to you, some closer than others. I have looked at these messages and have identified people I know to be my cousins just from the initials. However, most of the initials listed are completely unknown to me. These lists of relatives go on for pages and pages. I struggle with the value of trying to reach these distant relatives because, even if I can connect with any of them, no one can figure out just how we are related. What would we even talk about should we ever meet? Often, I just ignore the lists as there seem to be too many names to contemplate a possible contact.
As it turned out, KBP also took the same test with the same company, ancestry.com. But she also failed to notice a connection between her and anyone else. This story would have ended there but for the intervention of another cousin who also had taken the DNA spit test with Ancestry. This cousin spotted the relationship and alerted me. Once that occurred, we established a connection and then the rest of this story developed.
What took place some almost seventy years ago was the cause of this new relationship. Recall ( and this is particularly relevant to young readers) the decade of the 1950s was an era when abortion, though present, was in back lanes or in the shadows. Most of the time a child born out of wedlock was put up for adoption. In this case, an uncle and his then non-Jewish partner elected to put the child up for adoption and she was adopted into a family located in Alberta where she grew up. That would have been the end of the story – but for DNA.
My new cousin was ecstatic to find out about the whole new family she was now a part of and whose history was now hers. Even though she is now a Mormon, she was eager to explore her Jewish origins and indeed even came with me and my wife to synagogue at the Beth Tzedec Synagogue in Calgary not that long ago. She had much in common with the family. Most of all, she was so happy to delve into a past previously unknown. On the other hand, her birth mother, still alive at 93, rejected meeting her daughter from so long ago. KBP respects that view and has made peace with just her new association with Dad’s family.
Of course, what made this secret such a well kept secret for so long is that the uncle died young and never told anyone. Who then could have known? The truth is out and I, for one, am glad it is now out there. Not everyone in my family agrees with me, but the main protagonist in this tale, KBP, was supportive of my writing this article. Of course, the real test now is to see if and how this new relationship with KBP unfolds, if at all.
As I said in the beginning, this is not an isolated story. You can bet there are hundreds, maybe thousands of such stories out there waiting to be unearthed and told. It is all about DNA.
Features
Kevin Leach and the Sabre Training Advisory Group: Providing training assistance to the Ukrainian military
By MARTIN ZEILIG As a private citizen, Kevin Leach is following the example of the Government of Canada by providing much needed assistance to our democratic ally, Ukraine, in its fight against the unprovoked war of aggression launched by Russia on February 24, 2022.
Mr. Leach, who grew up in Palgrave, Ontario and lived in Toronto before moving to Ukraine, is the founder of the Sabre Training Advisory Group, a not-for-profit organization geared towards providing training assistance Ukraine’s military. He is a 10-year veteran of the Canadian Armed Forces, and served as an OSCE ceasefire observer in Ukraine from 2018 until the full-scale invasion in February 2022.
He founded the STAG in November 2022.
“Since the beginning of 2022, Canada has committed $4 billion in military assistance to Ukraine,” says the Government of Canada website.
“This funding will allow Canada to deliver military assistance to Ukraine through to 2029. We deeply admire the bravery and courage of Ukrainians who are fighting to defend their independence and freedom, and we will continue to work closely with our Allies and partners to help Ukraine defend its sovereignty and security Canada and Ukraine are close partners with a long-standing defence relationship.”
As well, Operation (Op) UNIFIER, the Canadian Armed Forces (CAF) military training and capacity building mission in Ukraine, “was launched in 2015 at the request of the Ukrainian government,” and in 2023, was expanded and extended until March 2026.
“Since the start of Op UNIFIER, the CAF has trained approximately 41,000 Ukrainian military and security personnel in battlefield tactics and advanced military skills,” says the online information.
“As the mission progressed, much of the direct training undertaken by CAF members transitioned to members of the Armed Forces of Ukraine, with Canadians acting as advisors and mentors as well as assisting in the development of courses.”
“Ukraine’s fight is a fight for international law, for the United Nations Charter, and for innocent civilians, including children, who deserve to live in peace,” Prime Minister Justin Trudeau says on his website.
Besides military aid and training, Canada has also provided significant economic support, and humanitarian assistance to Ukraine, and has welcomed tens of thousands Ukrainian refugees fleeing the war into our country.
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Mr. Leach, who is a frequent guest on the Mriya Report, a 24/7 site on X that provides in-depth information on the war, agreed to an email interview with this reporter.
Q: What was your motivation in forming STAG?
KL: Sabre is a professional military training non-profit. Our aim is to give Ukrainian defenders the skills to come home alive. We are building the capacity for Ukraine to defend itself against Russian aggression.
Sabre Training Advisory Group grew out of the frustrations its founding members had with the chaotic and unprofessional way that many foreign instructors were attempting to train Ukrainian soldiers in the NATO and Allied style of warfare.
Q: Who else works with you in the STAG?
KL: We have a team of volunteers from all over the world. They are former soldiers from Canada, the US, UK, and even Australia, plus our local Ukrainian volunteers. Our executive staff, besides myself, are two former officers from the British Army and US Marine Corps, respectively.
Q: Do you work closely with the Government of Ukraine or Ukraine’s military and/or the Canadian Armed Forces?
KL: We don’t work closely at this time with any civilian government, but we have an official partnership with the 4th Rapid Reaction Brigade “Rubizh”. As we’re still a relatively small organization, we don’t warrant much attention from governments.
Q: What else that you would like the public to know about your work?
KL: Training inside of Ukraine is vital. It is far more efficient than moving large numbers of Ukrainian troops around Europe, and being here puts us closer to the action, and allows us to adjust faster to lessons learned on the battlefield. We also need support! It is hard to fund a program like ours, as it’s quite unique. Typically the role we are filling would be performed by private military contractors, which are illegal in Ukraine and carry severe political risk due to public perception of these companies.
We set out to establish a high standard, using proper training techniques and taking a systematic approach to instruction. In just a few short months we were able to secure a high-quality training area, and a team of excellent instructors who draw on decades of collected military experience. We have successfully trained over 3000 Ukrainian warriors and medics, equipping them with essential skills and knowledge to excel on the battlefield. Our track record of tangible results demonstrates our commitment to the mission and the decisive impact on Ukrainian defenders.
For further information, visit the STAG website: www.sabretag.org
Features
Exploring 8 Innovative New Services in In-Home Care
In-home care has evolved significantly in recent years, driven by advancements in technology, changing demographics, and an increased focus on personalized care. These innovative services are transforming the way support is delivered, enhancing the quality of life for seniors and individuals with disabilities. Here are some of the most exciting and groundbreaking innovations that families can depend on when it comes to their space and the best practices to ensure comfort and safety.
Telehealth and Telemedicine
Telehealth and telemedicine have revolutionized health care by providing remote access to services. Through video consultations, seniors and caregivers can communicate with doctors, nurses, and specialists without leaving their homes. This reduces the need for frequent visits to health facilities, which can be challenging for those with mobility issues. Telehealth also enables continuous monitoring of chronic conditions, allowing providers to adjust treatments promptly and prevent complications.
Remote Monitoring and Wearable Devices
Wearable devices and remote monitoring systems are becoming essential tools. These devices can track vital signs such as heart rate, blood pressure, and oxygen levels, providing real-time data to caregivers and health professionals. Advanced systems can detect falls, monitor medication adherence, and even predict health issues before they become severe. This proactive approach allows for timely interventions, improving outcomes and enhancing the safety of in-home recipients.
Virtual Companionship and Social Engagement
Loneliness and social isolation are significant concerns for seniors living at home. Virtual companionship services, such as those provided by robots or virtual assistants, offer interaction and engagement to mitigate these issues. These technologies can remind individuals to take their medications, guide them through exercises, and provide cognitive stimulation through games and conversations. Additionally, platforms that facilitate virtual social gatherings and activities help seniors stay connected with family and friends, promoting mental and emotional well-being.
Personalized Care Plans and Artificial Intelligence
Artificial intelligence (AI) is playing a crucial role in developing personalized plans. AI algorithms can analyze data from various sources, including health records, lifestyle habits, and genetic information, to create customized strategies. These plans are tailored to the unique needs and preferences of each individual, ensuring they receive the most appropriate and effective solutions. AI can also assist caregivers by predicting potential health issues and suggesting preventive measures, thereby enhancing the overall quality of support.
Smart Home Technology
Smart technology is making it easier for seniors to live independently. Voice-activated assistants like Amazon’s Alexa and Google Home can control lights, thermostats, and appliances, reducing the physical effort required for daily tasks. Smart systems can also include sensors that detect movement, alerting caregivers if there is unusual activity or inactivity. This technology not only improves safety but also provides peace of mind for both the recipients and their families.
On-Demand and Flexible Care Services
The gig economy has introduced on-demand services to the in-home care industry. Platforms like Honor and CareLinx allow families to find and hire support quickly, providing flexibility and convenience. These services offer a wide range of options, from a few hours of assistance to round-the-clock support, accommodating the varying needs of individuals. The ability to schedule help on short notice ensures that support is available when it’s needed most. This includes teams like the one at Parners for Home Care; more on their services and support options can be found on their website: https://partnersforhomecare.ca/
Integrative Health and Wellness Programs
Holistic approaches to health and wellness are gaining traction – and for good reason. Integrative health programs combine traditional medical care with complementary therapies such as yoga, meditation, nutrition counseling, and physical therapy. These programs focus on the overall well-being of the individual, addressing physical, mental, and emotional health. As a result of promoting a balanced and healthy lifestyle, integrative health services can enhance the quality of life and prevent the onset of chronic conditions.
Enhanced Training and Support for Caregivers
Innovative training programs for caregivers are crucial in improving the quality of in-home care. Virtual reality (VR) and augmented reality (AR) technologies provide immersive training experiences, allowing support workers to practice and develop their skills in realistic scenarios. Additionally, online platforms offer ongoing education and support, helping individuals stay updated on best practices and new developments in the field. Enhanced training ensures that everyone is well-prepared to meet the diverse needs of their clients.
The Future of In-Home Care Services
The way we grow and age in comfort is rapidly changing, thanks to these innovative services and technologies. Telehealth, remote monitoring, virtual companionship, AI-driven plans, smart technology, on-demand services, integrative health programs, and enhanced training are all contributing to more personalized, efficient, and effective support. As these innovations continue to evolve, they hold the promise of significantly improving the lives of those who rely on in-home care, allowing them to age gracefully and independently in the comfort of their own spaces.